Thank you for posting these! We need more advocate’s! I have had a long journey with endo myself, I decided to have a complete hysterectomy at age 34 after being diagnosed with endo and pelvic congestion syndrome, I am 38 now, I am still having issues, horrible left side pelvic pain and now bowel issues 😔, I had lap surgery 2 weeks ago and a CT scan and they said they can’t find anything 😢 I get every word you said in this video makes me cry , hearing it reminds me of myself. Hang in there girl!!

I got a cyst removal when I was 15. Awful . Pain since I got my period my doctor said it was just ovarian cyst completely normal. It kept getting bigger. Got my first surgery. She drain the cyst really didn’t give me much information and then lived my life from there now 24 years old second surgery cause I was in unbearable pain and found out that I have severe endometriosis removed mostly all of my ovary and my fallopian tube, just trying to learn to live in manage

Thank you for sharing and sorry you have to go through this pain. Hope you are doing better and have it under control.

Your patient journey is invaluable to listen to ❤️ I am so so sorry that you’ve gone through this nightmare 🥺 I suffer from Chronic UTI and currently studying medicine with a particular focus on Women’s Health so hearing patient stories like yours gives me such an insight into what women with endo go through…keep sharing lovely 🫶🏻

I have stage 4 endo with bowel and uterus adhered together. All of scans were clear, ultrasound and MRI even though it has deeply infiltrated my bowels. Thanks for the video xx

Thank you for posting this,I am actually going through that at the moment.

Your symptoms are the same as what my cousin goes through! when she gets her period she almost gets into a seizure she's shaking she can't stand she can't breathe well and she's in a lot of pain. What worked for her was a very strong pain killer. I get what you went through cuz I've seen my cousin and it's horrible! I hope you're doing better now.

I had my diagnostic lap yesterday and started BAWLING when I was told they found lots of endometriosis

I'm Canadian, been fighting for over 10 years. I can not find the help. I was diagnosed however, everyone has thrown their hands up at me and said "there is nothing more I can do" . Husband and I are willing to travel. Any advice? Please. Tia.

Thank you for this video, it's really informative. I've been dealing with excruciating period pain since I was 16, I take the maximum amount of painkillers all week and even then I am clock watching until the next dose. Went to my doctors and they said I should take even more painkillers and that because I've 'dealt' with it since I was 16 I should be fine to manage it. Feel like I am just covering up the problem. I'm definitely going to look into the coil. If you had the pain 7 days a month would you say fighting for the diagnosis and the surgery was worth it?

Thank you for sharing!!

Have you tried Zoladex injections? I’ve heard mixed opinions on them but they were a godsend for me

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How long did it take you to recover from the laparoscopy surgery