My Impossible Medical Journey Ch. 2

Рет қаралды 11,494

2 жыл бұрын

IG: @TheTravelingHaloOfHope
Story about my experience leading up to ankle surgery, followed by getting cellulitis, recovering & finding out the extent of injuries that I sustained just 5 months prior were yet to be discovered. 1 bad landing changed the trajectory of my life. 10 years later I'd be diagnosed with a connective tissue disorder: Ehlers-Danlos Syndrome

Пікірлер: 51

@libbysosa7420 Жыл бұрын

Prayers for you for complete healing,Prayers that you will be able to heal,In Jesus name Amen

@Amy_McFarland Жыл бұрын

Definitely don't want to get me started about the medical circus. But I do want to say that you have a purpose far greater than you know! You are truly a courageous woman! May God continue to bless you and your family!

@MeganKing19 Жыл бұрын

He is always working. God has big plans for me. He has blessed my family & I in so many ways

@wandalester8624 Жыл бұрын

Megan, you are amazing girl!!!

@TheLastSamurai0_O Жыл бұрын

Prayers sent to you. Keep smiling and hope to a speedy recovery!

@MeganKing19 Жыл бұрын

Thank you for your prayers!!! Going to continue smiling.

@TaraFinlay Жыл бұрын

I feel these emotions so strongly. I had undiagnosed Lyme + 2 other tick-borne illnesses, along with endometriosis AND Ehlers Danlos type 3 (hypermobility) undiagnosed for several decades. I was misdiagnosed, humiliated, disbelieved, mis-medicated, mis-diagnosed, left with complications and trauma. I know you sharing your story will help others, and hopefully will help the medical community. ❤

@MeganKing19 Жыл бұрын

I'm so sorry you had to endure so much medical trauma. Sometimes I don't think people understand how harmful it is to hear the comments we do from healthcare professionals. It's damaging in so many ways. I'm glad you were eventually diagnosed & validated for all the symptoms for so long. It "only" took 10 years for me to be diagnosed with hEDS. Stay strong, Tara. I know you're strong & I don't know all the details to your story.

@TaraFinlay Жыл бұрын

@MeganKing19 I had a feeling right when you said you heard two pops that you also had hEDS. I haven't finished your series yet but I will. Hang in there fighter! ❤️

@kurtblank6488 2 жыл бұрын

Thinking a lot about you Megan. Hang in there ok. Love you Bunches

@feoleb 2 жыл бұрын

Thanks for posting this

@lloydh464 Жыл бұрын

Hi Megan You are an amazingly strong person. I'm sorry you've had to endure so much pain. I hope your pelvis heals quickly. I hope you have good days!

@MeganKing19 Жыл бұрын

Hello 👋 thank you for your well wishes!! Have a wonderful day/week.

@lloydh464 Жыл бұрын

@@MeganKing19 Hi Megan! What do you need from viewers to help make your life easier?

@fatalberti Жыл бұрын

experience with dismissive physicians seems to be common with many of us unfortunately. they don’t seem to be curious or thoughtful enough to learn from their mistakes. so sorry you have experienced tough medical conditions, injury, and poor physician care. you are a great example for all of us. all the best to you and your family

@MeganKing19 Жыл бұрын

I hate the dismissiveness that happens. It's better for me than it was but at the very beginning it was so hard. I didn't think I had a connective tissue disorder & actually felt a bit offended that it would even be suggested. In my mind I was healthy & I only sustained a bad injury. I wish there had been a doctor who tried to put it all together & talk to me in a better manner. Wishing you continued strength.

@richhunt7662 2 жыл бұрын

I'm so sorry for what you've been through. How's your ankle doing now?

@procta2343 Жыл бұрын

you poor lass, If i could give you a hug i would!

@8e11e Жыл бұрын

Meg. I too have experienced what it’s like to be overlooked by medical specialists. I recently got diagnosed with Eds at the age of 33. I know my life would have been different had I been taken seriously as a child. One doctor tried to warn my parents that I’d be in a wheelchair by age 30 if I didn’t protect my joints. He’s not far off. Unfortunately the majority of doctors convinced my parents that I was just sensitive and had anxiety. I was put on antidepressants at 16 (without being evaluated in person) and it’s just gone downhill from there unfortunately. Last year I had surgery to remove part of my brain that had herniated into my ear canal after so many failed surgeries to repair ear. I suffered 20 + ear /sinus infections and perforated ear drums for years and was blown off. I’ve been on so many antibiotics that I’ve developed a resistance to them. I felt like I was crazy. My husband convinced me to go to one last specialist and I was on the operating table the next day. Three tumours had completely destroyed my middle ear and skull. 7 years later I’m still trying to recover some from of life. My entire marriage I’ve been a shell of who my husband married. I’m now in chronic pain and have lost my hearing. A lifetime of missed opportunities haunt me. I never wanted anyone else to feel how I’ve felt. The anxiety and anger I feel when I go to a new specialist is the worst feeling. It’s having to regurgitate the hell I’ve been through. I honestly wouldn’t even go if it wasn’t for my family. I’ve lost most of my friends because they thought I was making it all up for attention. Which hurts the most. I’m sorry I didn’t intend to write a damn novel- I just wanted to say Thankyou for sharing your story. I don’t feel so alone in the world while simultaneously I’m so bloody sorry for all you’ve had to endure. I hope to be brave enough to start my own channel to share my story in the hopes of helping others not to feel alone and to bring awareness to the suffering women in particular go through still in the medical system. Thankyou for being brave. - Kate

@wandalester8624 Жыл бұрын

I spent 40 years trying to get Doctors to understand why l couldn't lift my legs. I told them l carried my last baby in a displaced position due to the damage a double procedure abortion twenty minutes apart, two years earlier in 1977. In 1979 l was laying on my stomach watching TV. All of a sudden l felt feet tiny feet kicking really fast. I say up and put my fingers on the spot where l felt the kicking. My fingers were touching my groin area. My baby grew the whole nine months on my pelvic floor. I have nerve and tendon damage to this day. They thought l had muscular dystrophy twice, but l didn't. I couldn't walk for four days after l delivered my 7 lb son. He was 21 inches long. He feels bad about my legs. I tell him, l begged God to help me carry him in a displaced position. Finally in 2018 someone listened to me. I had a total right hip replacement in 2019. I thought I would be able to run and ride my bike. Nope, never again! I have no way to control the right hip replacement. I walk like l am drunk or like a one year old learning to walk. I am thankful l don't have the Sharp pain in my right groin area though. I keep thinking it could be worse. I just don't want to fall again as I broke both arms in 2006. I am praying for all the comment authors! We are not alone!

@kurtblank6488 2 жыл бұрын

Love you Megan.

@judybrowning1463 Жыл бұрын

Prayers for you sweet girl. New follower

@MeganKing19 Жыл бұрын

Thank you for your prayers & for the follow!

@loyeantleyjr.8646 Жыл бұрын

❤❤❤

@MeganKing19 Жыл бұрын

Thank you!!

@user-cp7fp8hg2j 2 жыл бұрын

Невероятно, но посмотрел видео которому 5 лет и вот новое!

@Tm___ 2 жыл бұрын

You have really been through alot. My family members have EDS also.

@user-cp7fp8hg2j 2 жыл бұрын

А я думал EDS это редкий сендром, автору видео и Вышим родственникам сил и здоровья

@kurtblank6488 2 жыл бұрын

4/21/2022 10:17 Megan Thinkin Lots about you and I Love you Megga Bunches ❤❤✝️🙏💙💛💚❤

@Legittoquit1 Жыл бұрын

I’m so sad for you . I’m so sorry . This sucks ! I’m praying for you. And things are gonna look up!

@Legittoquit1 Жыл бұрын

I ment the doctors

@robertsmith987 Жыл бұрын

I came here im a nurse saw your halo video please make an update an update I hope u are doing ok

@libbysosa7420 Жыл бұрын

Sounds like Neuropathy,The top of my feet burn and feels like needles too and and toenails sometimes feel like the toenail is being pried off.

@MeganKing19 Жыл бұрын

I'm sorry you struggle with that! I damaged my ankle & it went undiagnosed for 5 months. I need to begin reading the next chapter of my blog. I documented my medical journey from when my accident happened in 2005 up to the current. I have to read the next chapter

@southernbelle193 Жыл бұрын

I’ve jumped around some but your ankle was the beginning, right? Then what happened. I saw your halo being removed and you mentioned spinal fusion. What caused that?

@MeganKing19 Жыл бұрын

Correct, ankle very beginning. I'm going to do a synopsis video in order to explain how things I went from ankle to spine. Spine fusions began in 2016. There's mini spine videos up but you won't really find what led to them.

@StefoVegas Жыл бұрын

Hey hey, how are u?

@rizwannawaz595 Жыл бұрын

you are brave women i ever seen prayer for you to live long from Allah ameen

@MeganKing19 Жыл бұрын

Thank you so much for your prayers!!

@julieking4304 Жыл бұрын

how did this lead to the neck halo....?

@MeganKing19 Жыл бұрын

A medical journey in the most literal sense. it has been just that a journey. A multitude of surgeries on my shoulders & shoulder blades. The weight of the brace on my upper spine all the time caused a lot of trouble. You add that with an underlying connective tissue disorder & my spine just was severely impacted. I was in a halo twice. The first was because was severely unstable & dispocating & sublixating at multiple levels so the halo was to a. Keep me safe b. find the proper amount of traction that retored function to my shoulder & help other symptoms. Second time in the halo my neck broke at C5/C6.

@daisymay1608 2 жыл бұрын

You know what I would like to hear more about? The spiritual lessons God has taught you through your trials and suffering. I love you Meg!

@AndyL940 Жыл бұрын

❤😢

@Fishbone4u Жыл бұрын

You completely left out how and when you got diagnosed with EDS. Did I miss something?

@MeganKing19 Жыл бұрын

I wasn't diagnosed yet when I read this blog. I'm reading everything in order from the very beginning back in 2005 to current. I didn't get diagnosed with EDS until 2015.

@Fishbone4u Жыл бұрын

@@MeganKing19 thanks for the reply and clarification. I have a friend with EDS and it is tough.