My family has elhers danlos, every insulting degrading thing has been said to them by medical professionals. We feel your pain ❤️

I think you're just an extraordinary intelligent and smart girl who rolled a really bad dice in life and you try to make the best of it. Don't listen to all the haters who don't understand your situation. Keep your chin up.

I’m 2:52 minutes in and I’m already triggered af lol I’ve been called crazy, a drug seeker… one tried to tell me that I was just missing my husband?! Yep. I missed him so much I grew three tumours in my middle ear that ate through my skull. 🤦🏼‍♀️🤦🏼‍♀️🤦🏼‍♀️ I try to be patient because everyone is only human but sometimes I wonder how some doctors get their medical license 😅

I really wish that your experience was rare, but those of us with complex or multiple medical problems have to deal with gaslighting all the time. And as a Chronic Pain Patient with end-stage CRPS as well as being a below knee amputee due to the condition burning off my foot & lower leg, I still get the “med seeking” judgement. Undergoing 14 major surgeries over the last 5 years (several due to medical error) has been agonizing and frustrating. Desperate for independence, when I tried to use the bathroom instead of my bedside commode last month, I ended up on the floor screaming. I had broken my hip and femur. Adding insult to literal injury, they accidentally tested my TSH while I was in the ER, and further testing revealed that I had Graves’ Disease that would’ve killed me by the end of summer had this not been caught. I appreciate you sharing your story and experiences ❤️ When life keeps throwing you off a proverbial cliff, it’s hard to keep fighting, and I feel like I’m reaching the end of my rope

I have a similar story when I was 17 in 2001, playing HS football. I blew my knee out and damaged nerves. Had 10 Right knee surgeries, developed CRPS, countless procedures, and now have a Medtronic pain pump that sends fentanyl to the spinal cord. Smoking cannabis also helps with the mental and physical pain. Good luck with your journey!

If I knew where you lived I would just knock on your door and give you a hug. ((No I’m not a weirdo lol. Just a genuine caring person) ((HUGS)) I’m watching your videos with tears down my cheeks. My heart hurts for you. ❤

New subscriber here. I had Myelitis at 2013 on right spinal cord. Today I’m recovered but slight weakness on my right arm and leg. I got into photography because a friend said I was talented. I relate to you in a way. Thank you for sharing your story.

You are one amazing person with amazing parents! I cringe just thinking what your next Chapter will be! You have something special in your nature, a spark that is nothing short of inspirational. As painful as this is, I know you are helping a lot of other people. Thanking you for sharing!

You hang in there girl, you are amazing!

I am so happy you are continuing to update us on your story. I just found your channel this evening and have binge watched all your videos already. You are strong and beautiful! I also am going through some health issues and your strength to pursue a better ending and not just settle for what a doctor tells you has given me the strength to not give up as well. I have been laughed at by one doctor when I told him I knew something still wasn't right so I went and seen another surgeon that had given me hope. But now after 9 months there is still something not right and I was ready to say "well I guess this is just how things are going to be for the rest of my life" but deep down I know this still isn't right. Thank you for the courage and strength to continue looking for an answer even if it means seeking yet another doctor. After 6 surgeries in 2 almost 3 years I also am looked at like I am just seeking pain meds. I live off 800mg of ibuprofen every 4-6 hours just to be able to function and move. I miss my old life, I feel like I took that old life for granted. But I am not ready to give up. I am not ok with sitting on my behind for the rest of my life watching the numbers rise on the scale because I can't function. Please continue to add updates and continue to tell your story. You have gained another faithful fan this evening that sends all the comforting hugs and prayers your way. You are an amazing person!

Thank you for sharing this I had a trimalleolour fracture after roller skating !! Life changing for reals ! Worst recovery , I develop an infection, allergic reaction and nerve damage it’s been 4 months and I’m still not myself . I have weakness in my ankle and after being an active and gym person this has been the hardest . I totally understand you . I kept telling them my feet felt like fire and they assume I wanted pain meds not realizing I had an infection in my wound which was caught on time but I could of lost my foot or worse . Greatful for life and appreciate the smallest things in life . Your such a strong soul ❤ I hope everything gets better for you 😢 what a hard and long recovery you had !!! God bless you your inspiring and strong 💪

That’s the first thing they always say about you being a drug seeker. One time I went into the ER because I have a problem with severe dehydration. I know the symptoms. I told the ER dr I needed a saline bag. Oh btw Dr. I have a history of severe edema because they always needed that info, but I didn’t have any right now. Which the ER dr scornfully said to me wow you could be an ankle model. I told my husband that he basically said I was lying. And that encounter made me feel so bad that I wouldn’t go back one time until my husband put me in the car. I don’t remember a lot. But they feared I was having a stroke. Long story. Ended up hospitalized. Anyway he said to me straight up I can’t give you pain meds. I looked at my husband and said did I ask for pain meds? And then I was so p/o when my husband went to the ER for sciatic pain and before he even went in they asked him if he wanted a shot of dilaudid? They really treat women horribly. Same thing with my heart I had been complaining for some time that I got terrible pains near my breast bone and terrible antacid (women do not have the typical symptoms as men. My cardiologist said that heartburn was my cue) they acknowledged that I had abnormal ekg but no big deal. I started thinking that I was a hypochondriac (mind you I have fibromyalgia, chronic mono, chronic shingles, tailbone break that never healed properly because the radiologist read the films wrong, erosive osteoarthritis, those are the highlights) I finally had a cardiologist say well let’s find out why they are abnormal. My tests came back so severe that they immediately had me come in for a cardiac catheterization. And even then 2. Different drs said I should just up my heart med. I said my dr wanted me to have the procedure, I’m having it! Then the dr who was performing it said to my husband and I there probably wasn’t a problem. My husband said he came out an hour later and said I had a 99% blockage and needed 2 stents. Women are not believed. They immediately label you a drug seeker and suggest that my obesity (which a lot of the medications made me gain weight) was the culprit. Just lose the weight. I have actually turned down opiates from ER dr because I’m on pain management. He was surprised and said oh okay thanks for letting me know. Though the ER is the hospital affiliated with all my drs and complete chart notes are in the system! All we want as patients especially when we have autoimmune problems and have actually researched everything, is to be believed! Don’t make judgements! Like you with your young age should not have hip problems. Listen to us. Believe me we have researched all the meds, procedures and what to expect and to do. Just because you look healthy doesn’t mean you are. “Chemo light” is what I describe my meds I take once a week for my arthritis. So my hair is thin but I haven’t lost enough to think I need to shave it. Other drs question why I’m on it? Sigh I hope you find a Dr that actually believes you and listens. Not give you the brush off.

It infuriates me in 2023 that those of us with genuine understanding physical pain & proof of our injuries are still accused of drug seeking!

a family member of mine also had this happen, she tore her labrum but they kept missing it and by the time it was diagnosed she had already missed out on two seasons of cross country and never returned to the sport. it was exactly the same thing - stubborn doctors saying it would be evident on the mri but they kept missing it. she did need surgery and it was her labrum.

💛💛

I’m curious if that Jump didn’t happen how would u be ?not trying to sound disrespectful just curious

Hello new sub here 25 year nurse