Instagram: @thetravelinghaloofhope
I've tried to be as honest as possible to show how EDS affects my life. Receiving an official diagnosis in Sept. 2015 at 26 has affected my life greatly. Having a hEDS diagnosis helped explain some of those nuances that confused so many. Had I walked into an ER like I did today & said I subluxated my shoulder in PT all bc of a reflex catching my water bottle I would've been doubted. Today that was not the case. They read up on my condition & did their best to help reduce my shoulder in a safe manner without causing more harm. They gave me an interscalene nerve block that was to last 12-24 hours. The doctor thought closer to 24 hours bc of how deep he went. Well, remember I said some patients metabolize meds fast? The nerve block lasted 5 hours & feeling started returning. Full sensation has now come back. So, having a diagnosis isn't ideal but it's so much better for me to have answers for why my body has done what it has. Validation is 🔑