It's absolutely crazy how much pain you hade to put up with...and still can put a lovely smile up for us!!!

I just saw your channel. You're a very brave young lady. I to have had numerous spine surgeries. I have had 2 neck fusions and 4 lumbar spine surgeries. To hear you describing the struggles that you have gone through. Makes me realize that my struggles are nothing like you had gone through. Young lady you give me courage to continue to live. I'm 53 yrs old and I also struggle with depression and anxiety. You are my hero and very brave and continue to live your life.

Please keep sharing your story/life please

You are very talented with your drawings

This is so incredibly relatable god. I have hEDS, POTS, and MALS and have just in the last 3ish years started figuring everything out. Two huge surgeries in and so many more small procedures. Doctors can be the cruelest people, and I’m so sorry you’ve had experience with them. I can certainly sympathize. I had one say “stop trying to be special” to me before I was diagnosed with anything and he straight ghosted me on an appointment that was scheduled three months in advance after he found out he was wrong about everything XD thanks for sharing your story, it makes being a zebra a little less lonely 🦓

The thing that really gets my goat is, there are times in life where it's NORMAL to be somewhat depressed. When you are a teenager and have had 5 surgeries in a year, have had to give up all the activities you love and had to battle every moment just to get basic treatment for injuries, who wouldn't be at least a little depressed?? Believe yourself, believe your body.

Megan I'm sorry you have had to endure so much. Just know I'm praying for your healing. God is with you. ❤🙏

Thank you for sharing your story. We have similar stories. I feel for you. It’s really hard to see the light. Mine was one jump too. Jumped off a fence after feeding my horses. Landed on my feet, did not fall but broke my pelvis. Have you shared your story with a geneticist? My one thing that led to over 30 surgeries. Also the depressing knowledge to know so many genetic issues will never go away. As far as Depression it’s more like bc of the situation I was in causing depression for me. Always trust yourself!! It’s your body and we know our bodies and minds better that healthcare workers…and I am a disabled RN who believed this even before my health problems. I also keep all of my medical records well most of them and radiology films. I have now filled two tall filing cabinets with paper files, a pile of MRIs about three foot tall, and a grocery bag of CT discs. Oh this doesn’t count one of my surgeries where my organs in abdomen ruptured out of the blue and I was told by the three surgeons I am lucky to be here. I was just to sick, lost four dress sizes way too skinny and could not go get that set of documents. I have also no records from over 75 hospitalizations that do not involve surgery. If I got those too, I would have to buy a bigger house. 🥹 Everyone know you’re not alone. 🤝 My daughter has the same genetic disorderS. It’s awful. Some days there’s just too much to deal with. When you have trouble with words….I get that also. Having CCI, refused to get repaired, a fractured neck, all of the stuff to follow plus medications brain fog as we just call it is common, I also have one inner ear canal on the circular part only seen by CT torn a hole in it and the surgery for that is going behind or above the ear into the skull which involves the brain so the surgeon said I was too high risk for that surgical repair…..the symptoms of that is a lot of sounds are so painful they elicit a fight/flight response in me). I also have both shoulder rotator cuffs torn which I’ve had repaired 3 times each and the third time the surgeon put cordage stuff around my shoulder joints to try and keep them from dislocating/tearing again…so no more surgery there for me, over 10 abdominal surgeries to fix torn soft tissue in organs including blood vessels resulting in being left with only the organs I need to survive…all else was removed, both hip ligaments and Labral tears fixed three times torn again so not repaired, both knee tears(one has bilateral meniscus tear/quad muscle tendon tear, the other knee has meniscus tears neither repaired), bones in feet sawed in two and screwed, bilateral ankle tendon tears one repaired then just retore again. I chose to stop the surgeries unless life threatening bc I kept tearing and hurting so why bother. I feel once it all started that one day it snowballed into hell. I was also once very active healthy, played sports, in school in marching band. I played competitive racket ball three times a week, and danced four hours a day and four times a week. Now I don’t get out unless I have too. Since Christmas I’ve been out of my house four times. Sucks. I can barely do anything even daily living like showers, and getting in and out of bed is agonizing. Everyone in the support groups also say they were very active when younger. None of my issues began until after my first pregnancy. This goes along with the genetic disorders which present either after a girl’s first period, or after first pregnancy. In guys it presents at birth or after puberty. They think the big hormonal shift during those times somehow activates the genes to begin screwing up our bodies. Now I am dealing with not being able to eat most food without my intestines swelling shut resulting in more hospital stays and my bloodwork showing i am now malnourished but I want to eat😢 I find myself saying I took care of people in the hospital before all of this worse off than I am so I should feel lucky. Except I don’t feel lucky. Sleep is only a luxury due to so much pain. My pain management Dr keeps trying to get me on stronger pain medication but there are too many side effects and when I want a break off the meds it’s very hard to wean down. Btw…don’t ever stop pain medication cold Turkey bc withdraw is intolerable. You look like you are feeling better? One of the things with the genetic disorders I deal with is we call them invisible disorders bc to anyone else…they can’t look at me and tell something is wrong unless I am fresh Post op. One woman in the support group had a person at the grocery store call police bc she parked in handicap (as I do with a placard). The lady did so bc the person in my group “DIDNT LOOK LIKE ANYTHING WAS WRONG WITH HER SO SHE SHOULDNT BE PARKING THERE”. This happens often and she didn’t need the spot. Sad that others are so judgmental at times. How do people not think that under her pretty clothes or ugly sweat suit doesn’t exist a huge incision complete with drains pinned to our undergarments! Too quick to judge I guess. What’s going on in this world today? Oops that will open up a whole new can of worms. Thanks for letting me vent. It wasn’t my intention. Your story brought up a lot in me. I pray you get back to your healthy self so you can enjoy life…putting medical problems behind. ❤

You’re a warrior 💛💛💛

The Lord is with you along this journey, as are we. Your strength gives us strength. ❤

Remember God will not put more on you than you can handle and you are so strong

Im your new fan you are a warrior

Got me beat by one! I think I had 9 or 10 right knee surgeries in 4-5 years. I went to Rush for one of the surgeries with the Bulls team doctor. All my other surgeries were done in Indianapolis. I’m 4-5 hours from Chicagoland and 2.5 hours from Indy.

WHAT AN INCREDIBLE TESTIMONY 👏 & I CAN SEE HOW UR RELATIONSHIP DEEPENED WITH THE LORD " THANK YOU FOR SHARING YOUR AMAZING JOURNEY OF HEALING BOTH INSIDE & OUT " YOU ARE A GREAT EXAMPLE 🤗OF BEING A FIGHTER & PERSEVERING, THROUGH SO MUCH PAIN " GOD BLESS YOU🤲💜🀄 MARANATHA ✨️

Thank you for sharing your story. Will add you to my prayer list. God gave a gift for me too. Photography. I didn't know I had a gift until a church friend taught me photography and said I am a natural. My photo portfolio link is in my bio. I hope you're doing better these days.

Are you on Lyrica? That can cause difficulty with finding words. If on it, could be adding to your mental quirks.

Hi, I have a spinal cord injury which causes me pretty bad pain every day. I wouldn’t sweat the doctors comment on the pain meds. He was probably just letting you know. I take them daily and they do effect my moods but not as bad as it was in the beginning. I know by experience that daily 24/7 pain causes depression. I feel for you an I hope and Pray you get some relief. God Bless

I’m new hello 👋

Megan i wonder if the doctor got it wrong about the ankle, and all this is a chain reaction due to that.

I can't even imagine dealing with the 3 surgeries, nevermind the other ones you have yet to tell us about. Believing Dr. Yeshua (Jesus in Hebrew) has a supernatural healing for you!!! I am aware of people who have had fusions disappear but the power of God.

God will heal you!

I invite you sister to learn about islam and other life if you persuie what the prophet has told us you will go to heaven inshaaalah may allah heal you