I just read that in the voice of the priest guy from The Princess Bride... Made it a million times funnier than it already was.

Or in the voice of Kripke from The Big Bang Theory 😅

😃😃😃

Oh ma lord you are creative

I literally laughed at this!!

Came to say this cos this is how my boyfriend is about my chronic migraines and other things the matter w me. It's heartbreakingly beautiful :')

It's beautiful. I am so happy for both.

If only.

My mom is my claudia (im 35) its sad but if you say how you fell etc doctors i feel dont believe you. If you have soneone yelling "no this this and this are issues!!!" They care a bit more.

*sigh.....wishful thinking it is

I totally agree Claudia is the best

I love them both, such strong and empowered women!!! 😍

She rocks

I’ve said the same thing. EVERYONE needs a Claudia. I love her.

i think you mean *must*

Please tell me you are going to sue the arse off of them? That sounds like hell, it should never happen to anyone.

Literally similar thing happened to me last month. I have PCOS and sometimes I have to go to the hospital because of it. It was very painful and I kept telling the doctor's that I have PCOS but like the doctor didn't believe me... She thought I had an STD or an infection, even though I told her I'm not sexually active (which she raised an eyebrow at). She then tried to bluff me by saying I can't get an ultrasound at this time (2am) (when I'm in the ER), and just gave me morphine. They found out that it was bleeding but did not find out if it had torsion... She just gave me meds and sent me home. I could have died, but thankfully I am okay. I should have gotten a CT scan, but she never took other steps to figure out my problem. I was and still am so very pissed off.

Nicole Bloopbloop YES! I was a virgin at the time and when I said that they said “really??”... no I’m LYING and want to die here thank you

Eleanor honestly I never sue... I don’t have time or money haha but really I should contact the hospital now that it is 6 years later and make sure they know what happened

Long comment ahead. TL;DR Y'all just helped me put two and two together. Thank you! Also, tips and tricks on how to get doctors to take you seriously. At age 29, I ended up with intermittent, severe back and pelvic pain. By age 33, it turned into chronic pain. No one would take me seriously about finding the source, and eventually I was sent to a pain doctor. I had a diagnosis of endometriosis, but there was none in the area that hurt, and surgery and hormones did nothing to stop the pain. But even that diagnosis took three years to get, because I was treated as pill-seeking. I mean, no one's supposed to have pain like that in their late 20's, right? *rolls eyes* 10 years later, I asked my OB/Gyn to do the diagnostic surgery to see if I still had endometriosis. Nope - it had never come back and my pelvis was textbook perfect. This had NEVER been the cause of my pain. I finally got the right diagnosis when I switched to a different pain doctor. On my very first appointment, the new doctor looked at my back and hips, and literally, with simple measurements and observation, told me "It's your Sacroiliac Joint - your right hip is tilted up and twisted forward". Later scans backed this up, because, heh, he actually ordered them. None of my previous doctors had. This could've been fixed with physical therapy back then. 15 years after the pain initially started, there's a lot of damage on that joint, and the physical therapist I was sent to ended up tearing one of my discs, trying to put the joint back in place. Walking wrong that whole time accelerated major disc degeneration. So now it's even more fucked up. But now I'm being taken seriously, because I'm in my 40's. The new pain doctor didn't think twice or grill me on the pain I was in. Back then? Nope. It's not like my condition or pain changed in all those years. The only difference was in how old I was. I had never even considered that my age would have contributed to that. Seriously, thank you all for your stories. It helps. It did teach me one thing - advocate like hell, like Claudia, and don't take no for an answer, no matter how much push back you get. You're the one that has to live with the consequences of what doctors will and won't do. They don't. Ask them to do scans (aka, proof); get the reports and images CD and bring them to every doctor you see; tell them that other doctors haven't figured it out (doctors with huge egos love this, because they think they'll be the one to fix you); go into detail about every single symptom, down to your fingernails, because they won't ask about other symptoms if they think they're on the right track with the diagnosis they're thinking of. If you know the type of specialist that could help with your symptoms, like Claudia, just ask for a referral. A lot of primary care doctors would love to get you off their hands. It's not even from an overblown ego or mean place - doctors really hate it when they can't help or don't know the answer. It helps them too, if they feel like they're doing everything they can. Also, doctors love documentation, like symptom trackers, diet trackers, exercise trackers, sleep trackers, medication trackers, medication interaction printouts, etc. Doctors tend to take people more seriously if they're tracking everything. If it's pain you're dealing with, printout one of the "real" pain charts - the ones that doctors think of versus what patients think of - and point out where you're at with that chart. Don't say an 11, because otherwise they think you're lying. To doctors, a 10 is you're passed out because you've got burns on 90% of your body. Just some tips and tricks I've learned over the years. It's important that every single avenue is explored. I mean, the heart-breaking stories in these comments show what happens when doctors make assumptions. It's up to us to make sure nothing is left out.

sounds _fuuuuuuuun_

Shout out to the emergence of my personality disorder and manifestation of severe social anxiety to the point of constant derealization 👁👄👁

Got psoriasis for the first time in my second year of law school 😓

had an depressive episode within 3 weeks of uni. I have to be put on pills.

I ghosted uni 2 years ago (on my 3rd year) and have never talked to anyone about what went wrong. Yey.

This reminds me of Lorenzo's Oil - two parents literally learn how ALD worked so they could treat their son and somewhat "solved" some mysteries about ALD. en.wikipedia.org/wiki/Lorenzo%27s_Oil

@@johndododoe1411 Awww, thank you. This is such an old comment that I'd forgotten about it. I needed the reminder that I was able to facilitate that. It was a nice boost on a kind of blah day. ❤

It's so true. Advocating for yourself in medical situations can be likd going into battle and it shouldn't be like that but unfortunately an awful lot of medical training is the same as it was 50 years ago and a lot of medics just don't know what to do with a patient with more complex needs, so they get fobbed off or disbelieved.

@@karenthomas1456. I had FINALLY found THE doctor and within the first year and a half she saved my life twice! Then I lost her, she had to move across the country and I struggled to find a GP as I was now a “complicated” case. I had had 3 types of cancer, fibromyalgia, Raynaud’s in my feet and hands, then I got hit with Chronic Fatigue/Myalgic Encephalomyelitis, and just as I was learning how to Pace and eat more protein and gentle stretching, I got hit with Lupus a year ago! Then I was struggling with the “fainting” which is still being investigated and now I’m on a drug because my heart keeps trying to go into Atrial Fibrillation. The MOST annoying thing about this whole process is that I had a male doctor and had to fight for every single diagnosis. Then I got the empathetic female doctor and my life was SO much better! Then I lost her and had to find another doctor and ended up with TWO males (who also don’t do assisted death, but beggars can’t be choosers and that is another discussion). So I am back to having to fight for every diagnosis and step forward! I am so drawn to Jessica and Claudia’s journey and can so empathize 👋🇨🇦

My abusive ex used my disabling chronic illnesses against me, in exactly that way -- telling me that no one else would ever want me and that I'd be alone forever if I ever left him. He constantly told me I was a huge burden on him, holding him back from having the life he wanted and making him miserable. NONE of that was true. But it took me a long time, after I finally got away from him, to learn and figure that all out. I had a lot of support & help from my best friend, Mike, who's now my flatmate and carer. I've dated women since that nightmare ex-boyfriend who've displayed ableist attitudes and I've broken up with them because of those attitudes. Why should I give my time & love to someone who doesn't even see me as their equal?? You DESERVE a partner who loves, respects and values you for who you are -- and not "in spite of" your disabilities/chronic illness. They're part of who we are and continue to shape our lives, every day. We're not less-than because of them. Maybe if I hadn't been surrounded by deeply ableist people my whole life, it wouldn't have taken an intensely abusive relationship for me to realise all that. It makes me want to speak out and teach other chronically ill & disabled folks (especially kids & young people) the same things, y'know?

Jordan Blake you are not a burden and someone will love the heck outta you and all of your illnesses !!! Xoxoxo

You are never a burden, that is such a common and flawed assumption from so many people but the reality is, good hearted people are out there and willing to find a solution alongside you, are willing to give you the best quality of life they can offer, because at the end of the day no one is like you, and your personality will speak to someone else's so perfectly that you'll both fight to provide for each other and love each other. It takes 2 people wanting to follow a path together and always encouraging each other on that path :)

honestly, as a gay man i get you. i'm mentally ill and disordered to the point where it harms my everyday life, and things like this make me feel a little bit closer to not being a burden.

Yeah, I'm bi but in a hetero marriage. I have this laundry list of intertwined, all disabling-in-their-own-right, chronic illnesses. I was independent and working when we were dating and engaged, and even though I was still desperately ill, it was the illness I was used to and knew how to manage and deal with the symptoms. My health absolutely plummeted during the engagement and first few years of marriage, and I feel like this millstone around his neck. All the plans we had while dating and engaged were hinged on my being able to chip in with time, money, and effort, and so they're just ashes now. But... he doesn't use my disability against me, he encourages me to be as independent and capable as possible, and he loves me. Life would be better if I were healthy, there's no getting around that, but he doesn't resent the situation we're in, and I'm so grateful for it.

I’m beginning to think, all females lesbian or straight need one.

@@sonofhibbs4425 Straight females can have a male Claudia.) My partner does so much great things for my health (I’m also on disability), that I could make a video of my own. I’m not as pretty, though, and don’t have thousands of subscribers, so I’m not gonna.)))

Jana Vikulova Awww...I bet that you are pretty! Don’t be so harsh with yourself. 🦋

LMAO❤

Casper Ghostly You’re exactly right. A lot of people who don’t often have pain or a type of pain will say it’s “really bad” but that doesn’t explain it very well. If you say “I can’t sit upright because of the pain in my ____” it is more helpful and descriptive

Casper Ghostly this is very helpful, thank you

*immediately takes notes*

EveesCastle its not even that you know more, irs that they dont trust you and therefore they are gatekeeping your treatment

I personally would like to know what cereal box these doctors are getting their degrees from. I find it incredibly hard to believe they made it through med school without failing out from stupidity or having someone punch them into another dimension for their shit attitudes.

Oh my God, Rinna, exactly. So many horror stories I know. Why anyone trusts the profession is beyond me. Some doctors are wonderful beyond wonderful, but they are often booked and busy with everyone else desperately seeking good health care. They are sadly few and far between. Add in insurance policies, and it’s often the poor who get stuck with awful doctors. There’s this phrase: “ the rich stay healthy, the sick stay poor”... gee, I wonder why.

@@aelinluna3434 yes thank you I wanted to say it too

I feel like there's so many of us that feel this way.

Skip6235 it's true I live in the Caribbean and went to A&E due to a back pain that made me some what immobile for hours and the doctors didn't even take a look at my back he just told me to lose weight and I will be fine. I was so mad that I wasted my time and went to the hospital it was better I stayed home and just suffer through the pain

I was about to say; heaven forbid you're a fat women trying to get someone to listen to you 😑

So true, and it's infuriating. Pretty sure I read an article about that or a similar situation, turned out she had really bad endometriosis and it could've killed her (if I remember correctly).

Skip6235 i've read a similar thing which SPECIFICALLY tells nurses that if a female is rating pain on a scale of ten to mentally add two/three BECAUSE women tend to understate how much pain they are in. i think it is a mixture of gendered socialisation (think of the doctor who told Jessica "she can't have kidney stones! male rugby players crying!") and different conceptions of pain, physically or psychologically. medicine could really benefit from conducting studies on how pain is felt & how it is evaluated (accurately and not) according to perceived gender (and/or age). i know that there is little to no literature on treating trans patients (and have heard unsettling stories from trans friends on their experiences in hospitals).

BattyButtercup I think women do underestimate how much pain we are in. The pain I was in had me in tears but I still tried my best to move around even tho it felt like my lower half was strapped down.

flawlix god same

Same, I have to go to the dermatologist and its crazy expensive. I cant imagine all those specialists in the US

My wife doesn't have nearly this list of medical problems, but she does have quite a few. Our primary reason for moving out of the US is due to medical expenses...and she's on disability. The prices are STILL outrageous for hospital care. One time got a bill that was nearly what I made in an entire year before taxes. So glad they're not in the US, I think Jessica would have hit the maximum allowed (which Obama got rid of thankfully) and insurance wouldn't have covered anything anymore.

Claudia has a wonderfully rich voice. I'm a singer and I do theater so I very much appreciate lovely vocal tones.

0

You ladies are the cutest couple ever! You both seem so warm & relatable. I feel like if I ever could meet you, it would be fun to hang out with you.

My partner remembers my allergies and health issues more than I do (I mean, it's a huge list and there's some brain damage), he's just like Claudia. He advocates and fights so hard for me, truly lucky to have him. Everyone really should have that person that goes to bat for them when they can't and stands with you when you're trying.

Joshua Creel YES! it's INFURIATING! and then there's the similar "oh, you have asthma/eczema? you just haven't used your inhalers/creams properly". I WAS ON A NEBULISER PRETTY MUCH WEEKLY MY ENTIRE CHILDHOOD and teachers & peers just told me that THEIR asthma didn't stop them so why was MY asthma so "special"? the eczema was/is different because it was often VISIBLY painful. still wasn't told i was allowed to take painkillers until years into living in pain daily. "chronic" plus "obscure condition" & "chronic" plus "hugely common minor thing" are both things that just don't exist in people's heads. and they usually don't care to learn either. :(

I had a super simple problem to solve when I was ten. My knee swelled up to the size of a football and was locking and giving way with every other step. It ended up taking four years and two MRIs (and tests for rheumatoid arthritis and a myriad of other things that ended up getting ruled out) to diagnose a torn meniscus. A damn torn meniscus. A stupidly common injury. But because it took four years to diagnose, and because I also have collapsed arches that screw up how I build muscle around my knee and hip joints, I now have a chronic knee condition that's going to plague me for the rest of my life and probably end up with me needing early hip and knee replacements on that side. All because the first MRI apparently didn't pick up a whopping great tear in my meniscus and a bunch of loose cartilage flapping around inside my knee. (And the doctor that finally diagnosed me did it by walking behind me down a corridor, seeing my collapsed arches, and working backwards from there with an MRI to confirm his suspicions. A paediatric knee specialist, of course. Find yourselves a specialist, guys, they work wonders.)

i have definitely been to specialists, other than very self evident thyroid cancer they're still pretty confused lol.

@@joshuacreel3000 Yeah, they're better than generic GPs but not all-knowing all-seeing. Unfortunately. Life would be much easier if they were. My specialist comment wasn't aimed at anyone in particular, more just backing up what Jessica said re specialists being better at getting people to pay attention to you.

It's still a problem if your chronic and have something fairly common, if they can't fix you easily they don't tend to try.

Amen.

I made it 100 likes😊!!

I hope you come back and see this? We see you and hold you in our hearts 💕🥰🥰🥰 There will be someone for you ❣️👋🇨🇦

One thing I learned recently at university (I'm studying Biomedical Science with a major in Human Genetics) that really explained a lot about pain hypersensitisation (I'm guessing Fibromyalgia, in your case? That's one of my dx) is that the vast majority of the work our brains do is dampening signals, not producing them. Sending a signal is the default setting and the brain has to work to dampen signals that aren't needed, at the time. So a lot of different medical conditions are related to a failure to properly dampen certain signals. It's essentially a dysregulation of the brain's STFU mechanisms 😁

@@chronicallyfabulous88 omg 😂

I know you left this comment at least a year ago, but just saw this and wanted to say it might be good for you and your folks to start researching for a good doctor to transition to once you are 21, and asking your good doctor who she'd recommend, etc. it is SO nice to have a good doctor who cares and wants to help though and I'm glad you guys found one! Good luck!

What do you mean?

@@RachelJ715 Ah, this is quite old but she made a video a year ago talking about how she was misdiagnosed with MCTD, and it was actually Ehlers-Danlos all along.

Whenever a doctor wants to explain any of the Latin terms in their diagnose I'm always like "Already know that one" because at this point I probably read every damn medical article about my conditions so just throw the Latin terms at me and get it over with. I also know most terms in both my native language and English as well so I can talk and Google easier about it online. Over the years I've gotten very good with fighting for myself and my own health. It took a bit of time but now I won't stop until someone can at least explain some of my symptoms.

DieAlteistwiederda unfortunately we have to. For some reason docs don’t want to listen to us. I’ve found that female docs are a bit better so if you can find a female do it.

Hellena Rose II sometimes you need to really make them hear you. HEAR you, not just “listen”. They always claim to listen and my response is always then HEAR ME. Good luck to you.

Also- I studied in the UK for 2 months this year as part of my elective and I did notice the lack of sharing of clinical information between hospitals and services. Some are also just paper and not electronic. It was SO annoying and shocking (I was in a big center in London) And the administration in general is quite bad. One time they lost on of our patients' notes in transfer???

Claudia is actually a dentist

I;m in NZ and chronic. Mostly a and e have been pretty good to me, and believed me. The waiting room is awful, but once you are taken through, mostly not too bad. At least they listened, which is a major plus cos my condition is super duper rare and most doctors have never heard of it. I haven't found our paperwork to be very good though. Even within the same hospital different departments don't have access to my history, diagnoses, meds i am on, or meds i have taken in the past. it is my job to tell them, and i always miss at least one condition or med.

Yeah, I spent the whole video realising that we have really good hospitals in NZ(apart from the wait time). I’m only 13 but from all my experiences in hospitals, everyone is really nice and respectful and never tell you that you’re not actually sick. Most of the time we just go in and say what’s wrong and they’ll be like “ok you can get surgery at this time or go to a private place and not wait”

@@susanwilliams2392 im glad to hear!! We do try our best and we are very lucky here in aotearoa. Looking back at this post amongst covid times is crazy ❤

sarahwithstars xxxxxxx💕💜😘😍

^^ I ship

Cute

Yeah, and then that look on Jessica's face 😂 I just love them

Lol which one is deaf again??

Relax, she was just kidding, because in this situation Claudia was the one who acted like she didn't hear Jessica say "it looks like feathers" and said "yeah or like feathers", which was kind of funny. :)

Time stamp?

Wild Child 0:41

Sabrina Fairchild I don’t know you, but I can assure you that you’re not. Though granted it’s a bit harder to meet people from a dark room, it can still happen. Love and joy to you, and may you find your person, the one right for you and for whom you are just right too.

I know it has been a year since you posted this message. I sincerely hope you are doing well and feeling better.

That "you are too young" phrase bugs me. It is an assumption that can prove fatal as anybody who is familiar with young onset bowel cancer will tell you.

I had bunions as a kid (genetics) and as I was growing up they were slowing me down to when I was 14 I would mow the lawn and then couldn’t walk for a couple days because of the pain I was in. (I personally rated it a 5 and the doctor said it should’ve been a 8) and I was told by two physicians that I’m too young for bunions and that I can’t have a correctional surgery until I’m in my 40s. Then I found a physician that listened to me, checked that my feet weren’t going to grow anymore and even diagnosed I had bunionettes (tailors bunions) on my pinky toes and a few months later I had the first surgery and a few months after that the second. In all I had ten pins to straighten four toes and I had to relearn how to walk, wear flip flops, and run. But. But. I found someone who listened to me. It really changed my quality of life.

I hate the “too young to be in pain” thing got that a lot as a teenager until they diagnosed me with gastroparesis. Also I still get that now when dealing with my chronic ankle pain from two surgeries.

I had a herniated disc in my back from the age of 12 until it finally ruptured at 27. I was misdiagnosed over and over and my pain was dismissed. I now have nerve damage in my leg. Thanks to all the doctors I saw who didn't believe my pain levels....and one doctor who hit on me and told me if I dated him he would give me the pain meds I needed. Bastard! Of course i told him NO. I suffered for years.

I used to drag my mother along to all my appointments since she's more assertive than me. Having an older lady to tell them where to stick it, even when you're an adult seems to help get things done. I've given up on gp's, if you can see a specialist I think that's the way to go - I should have gone to a sports injury clinic last time

No wonder they got married...

Maybe Dr. Hope would be rather worth a try, as he's at least based in the UK :) GB has their fair share of doctors with social media, who might be easier to reach, if they wanted to do a collab like that. Maybe even someone with an accommodating speciality.

Oh shoot, that's genius! Can we please bring this idea back to life??

Find a new one n report that one.

What an utter asshole!

Working on that right now! :)

My family dr told me that when I was looking for a diagnosis for my asthma. -.- My parents left it at that and I wound up in ICU on a machine forcing me to breath because even the steroids they were giving weren't working to clear my lungs.

It's terrifying how many people's symptoms are ignored by healthcare workers do to weight bias.

Thank you! I'm glad you like the video! ❤️

Some of the comments from people without universal healthcare seem to suggest that it's not all that much better over there, unless you can afford the best specialists - I guess I'd rather have free (at the point of use) chaos than chaos that bankrupts me. I can't imagine how much Jessica and Claudia would have spent now if we didn't have the NHS.

Jane Justice Doe good luck 😊

It took me years to be diagnosed (with lupus sle, cyclic vomiting syndrome, and psoriatic arthritis) and I was constantly being told nothing was wrong with me. Just keep advocating for yourself, don't give up ❤

@@ddubfan thank you very much!

@@EmilyCricket thank you!!

As someone diagnosed with anxiety from a young age (who also maybe has some other physical stuff going wrong?) My constant fear is that I'll be like dying (or at least have something going horribly wrong) and either 1. Doctors will assume its anxiety Or 2. I'll assume it's anxiety People always say "you know your body best and if you think something's wrong then pursue that" but it can be really hard to tell sometimes if I have symptoms because i'm panicking vs if i'm panicking because I have symptoms But also if doctors think something is anxiety then the best way to help is to ease the patient's anxiety by making sure nothing else is wrong! My favorite doctor I ever had was one who recognized I was consistently very anxious about heart problems (no family history or anything, just anxiety being anxiety) and told me that if i was concerned i could check blood flow to my fingers by squeezing them gently and watching the color come back, and if that was ok then I didn't need to worry. That's so much more helpful than being told it's anxiety and getting sent off! Its 3am here and my thoughts are all scrambled but I hate the idea of any doctor just saying its anxiety and leaving it at that! Whether anxiety or not, its obviously an issue and should be treated as such

Bless you

Fucking hell, go to A&E before even more troubles start dear lord o.o

Ya I know the emergency room sucks but if you just leave it like that for a long time it could heal in a bad position and that is REALLY bad

THEWILDONESAPPEAR I don't know about this person in particular, but for some people this is just... Everyday life. Wake up and three joints are dislocated, pop them back in if possible.

It is only stated that it helps if your IBS is of the diarrhetic type. It will also not develop you a healthy microbiome in your gut - it is capable of killing certain harmful bacterias, but not giving you right ones instead. It will thus not help all IBS patients, only some of them.