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@user-qc2ky3uy9q
@user-qc2ky3uy9q 11 күн бұрын
Cool be safe in Christ God Bless 😊you and your whole family tree and friends
@melissaarcher256
@melissaarcher256 13 күн бұрын
I'm sorry. My Mom is in ICU right now with respiratory failure from sps. It's been a long rough road and if the insurance company hadn't made it so difficult to get her baclofen pump refilled, she wouldn't be on a ventilator right now.
@InvisibleDisability
@InvisibleDisability 6 сағат бұрын
How horrible! 💔
@nickyannajones
@nickyannajones 28 күн бұрын
This needs so many more views. It made me feel understood but with humor. Well done!
@susanmcmichael5607
@susanmcmichael5607 28 күн бұрын
I am waiting between 6-7months to be seen by a movement specialist neurologist. I was also rejected by Mayo. I live alone, have Alzheimer’s mild and Ataxia…I’m 75 years old. I don’t know what to do…
@InvisibleDisability
@InvisibleDisability 6 сағат бұрын
We are so very sorry to hear this! 💔
@mariawild8917
@mariawild8917 Ай бұрын
My friend eventually got to see’The neurologist. She was told it’s down to trauma/ptd and the treatment needed is counselling. Does any one here have any thoughts about this? Ty
@Mannsy83
@Mannsy83 2 ай бұрын
This deserves more viewss considering the back stories of the artists
@InvisibleDisability
@InvisibleDisability Ай бұрын
So true! Thank you for your comment! 💙
@rhondasanders4323
@rhondasanders4323 2 ай бұрын
N this is super old, but so true.
@InvisibleDisability
@InvisibleDisability Ай бұрын
Thank you! Sherri has been too ill to make more. 💙
@rhondasanders4323
@rhondasanders4323 2 ай бұрын
It’s just not fragrance for me, ITS ALL CHEMICALS. it gets in my mouth. Toxins that nobody can even smell. But I taste and smell it and feel saturated with it right now. And my heart is having pain. I eat toothpaste to try to help the taste in my mouth. I feel like I’m sucking on a straw. A straw that is in a glass of poison right now, as I type this. No escape. I live with my family. My sister has mor compassion. I’ve explained it to my stepmom. She STILL can’t understand you can’t put clothes in the washer that liquid toxins spilled all over my Dads shirt. But she did. And it’s all through the house and I live on the opposite side of the house. My Dad came to my closed door and I spoke to him from the crack and I got a super explosion of chemicals! 😩!!! I get a headache right off! I feel so trapped and wish I weren’t here. It’s a NIGHTMARE
@InvisibleDisability
@InvisibleDisability Ай бұрын
We are so sorry to hear this! Yes, it's the chemicals hidden in fragrances we talk about and there are also these and other chemicals in other things, not all are in scents. 💙
@paxwallace8324
@paxwallace8324 2 ай бұрын
Listen if she were deaf she couldn't identify pitch. If she's had surgery then she ain't deaf. If she's got some kind of bone conduction going on then she's not deaf
@InvisibleDisability
@InvisibleDisability Ай бұрын
Mandy lost her hearing in college. She kept her pitch by practicing every day with pitch apps and muscle memory. She feels the vibration of the instruments through the floor. At the time of this video, she had not had any surgeries. Even many with surgical implants still remain deaf or hard of hearing. 💙
@thomascrews8598
@thomascrews8598 2 ай бұрын
Tara, are you still extremely symptomatic with your stiff Persons Syndrome and your autonomic dysfunction? Dr Crews
@earlinesmith4717
@earlinesmith4717 2 ай бұрын
Negative GAD LEVEL and full body spams...diaphragm locks down and having to be intubated????
@NeilStewart-zz2ex
@NeilStewart-zz2ex 3 ай бұрын
Well done. Thanks
@InvisibleDisability
@InvisibleDisability Ай бұрын
Thank you for your kind comment! 💙
@OfficialLadyDarkSky
@OfficialLadyDarkSky 3 ай бұрын
people think because i always act happy and smile and greet people that i m a faker, if they knew how much pain i was in daily would they give me pitty because i have fibro? who wants pitty. not me!
@InvisibleDisability
@InvisibleDisability Ай бұрын
Agree! We're not trying to elicit pity, but belief that these illnesses and injuries are real, whether someone can "see" them or not. So many people are debilitated from time to time or all the time. People around them often accuse them of just making excuses, exaggerating or even making it up. It is so hard when people WANT to go places or do things, but are accused of these things. 💙
@barbjohnson778
@barbjohnson778 3 ай бұрын
Thank you for sharing this. People who are healthy lose sight that there are people silently suffering out in the world.
@InvisibleDisability
@InvisibleDisability Ай бұрын
So true! 💙
@rosemarytaylor5097
@rosemarytaylor5097 3 ай бұрын
Does a women that has a hysterectomy have estrogen ??? Can we control this ?
@RebDalmas
@RebDalmas 5 ай бұрын
The law of compounding effects. All those seemingly little " no significant difference" is a difference. And that tiny difference moves in exponential ways that in one moment become an elephant in the room. The same has generated autism and all other attention disorders. Look at the outcome of public schools! What are all the attention disorders but FOCUS problems. How did we ever thing that days in our developmental years being spent in a room memorizing information is an education? It is separation from the fulfillment of the engagement of ALL senses! if we are absent from creation, from balance, as connection to nature - and every day- as opposed to memorizing info about things, and imagining ONLY rather than physical engagement, the outcome is separation. That builds focus problems as the info in the flesh is a cognitive dissonance of reality. And it happened over generations. So, attention disorders are now another " elephant " in the room. Get your kids out of public schools, they are toxic, or counter intuitive to how our amazing bodies work!
@mifortalezaesmife3715
@mifortalezaesmife3715 6 ай бұрын
I thank you so very MUCH 🎉❤ For your Books and videos 🙌🙌🙌😍🍀🍀🥰🍀
@belladuvenage5216
@belladuvenage5216 6 ай бұрын
This is the best advice ever. Thank you
@ingritamoreno
@ingritamoreno 6 ай бұрын
Thank you both for sharing this. I think you both are very blessed to have well at least in the case of Lea her parents close by to help her. I do not know much about Ilea hi by the way! I assume you two still work at your jobs and that’s another blessing. I wish you both only the best ❤
@zengrl2672
@zengrl2672 6 ай бұрын
Jodi...I AM ONE OF THESE PEOPLE! 1985-near fatal car accident; 10-day coma; 2 brain surgeries (1 removable, intracranial blood clot, one in-operable dissolved with medication) 3.5 mon. hospital stay; re-learned EVERYTHING-just like a baby again...I turned 22 in the hosp. What I have achieved since and still, is nothing short of a miracle!! I want to share my story with others who may have a person in their life that has suffered a TBI and who's life changed instantly! I want to offer a sense of hope and belief in miracles, for families of someone with TBI. Please point me in the direction of who to speak to about such an opportunity- There is hope!! Thank you, Leslie Smith
@LordHasenpfeffer
@LordHasenpfeffer 7 ай бұрын
So funny! I've been browsing around for every video I can find of Mandy performing over the years... Just found this one. Hilariously awesome! What a career moment! 🙂
@LordHasenpfeffer
@LordHasenpfeffer 7 ай бұрын
Fantastic musical accompaniment behind her on this version of an already gorgeous composition... the piano in particular.
@LordHasenpfeffer
@LordHasenpfeffer 7 ай бұрын
I just bought all 5 of her CDs last month from her web site. They arrived last week and *this* song was the one from "All Of Me." that floored me most on first listen. I didn't realize at the time she wrote it too. Her gifts are transcendent and cannot be described in words. I want to feel guilty for enjoying what she cannot but I know how much that would upset her if she knew.
@stevenjordan6389
@stevenjordan6389 7 ай бұрын
Tara you have contact info. on the 20 outfits helping people with SPS,maybe yours too. Iam 41 years in.need out or help,please help.Thanks.I wes treated for 3 years then shut out.I have evil in my family.
@jadehei538
@jadehei538 7 ай бұрын
Oh I wish people realised this. I can't visit people and people can't visit me. Everyone says they want to see me more but they won't give up fragrances 😞 other people just disappear.
@BCSchmerker
@BCSchmerker 8 ай бұрын
+invisibledisability *Thanks for the heads up on the not so obvious conditions.* Shortlisted is a National ID that lists: Autism Involuntary mutism
@emilycarver595
@emilycarver595 8 ай бұрын
Thank you so much! I absolutely love, and I am so grateful for your legislative advocacy, along with your approach involving humor to heal. I was voted class clown in high school, and behind the scenes had a wealth of mental and physical illnesses, but I would not let anyone see them. my dry sense of humor is what got me through high school and helped me to cope, however, I to hid all of my painful secrets, because of pride, and the fear, that if I did not appear perfect I would not achieve my goals. ultimately I could not keep this up and it led me to deep depression and other issues, compounding my physical and mental pain because I hid it instead of seeking help. I was further diagnosed with other invisible illnesses in my late 30s after going from doctor to doctor trying to figure out what was going on. I was further diagnosed with other invisible illnesses in my late 30s after going from doctor to doctor trying to figure out what was going on. I am now 43 and trying to find someway to redefine myself, so that I have a purpose in life and can work. My depression impairs this and I think that employing humor again would definitely help. There’s a mean between extremes, and I definitely have gone from one end of the spectrum to the next your strategy in approach, gives me hope and I cannot thank you enough.
@nativeamericanaffairs1031
@nativeamericanaffairs1031 8 ай бұрын
ADA ADVOCATE INVISIBLE DISABILITIES UNLOCKING INJUSTICE TITLE 42 1983 12101 SUPREME COURTS PROHIBITS DISCRIMINATION AGAINST ANY INDIVIDUAL WITH A DISABILITIES KEEP ME POSTED ELIZABETH KNIGHT WATCHING FROM ILLINOIS
@SillySherriProductions
@SillySherriProductions 8 ай бұрын
It's going to be amazing! ❤🎉❤
@lisamerritt5531
@lisamerritt5531 8 ай бұрын
I m have small fiber neuropathy with dysautonomia, Sjogrens and now SPS. I think SFN and SPS are linked.
@SillySherriProductions
@SillySherriProductions 9 ай бұрын
It's going to be another amazing year! ❤🎉❤
@veroniquemarie9037
@veroniquemarie9037 10 ай бұрын
I am si Happy and grateful 🥹 that I have watched this video on this topic. I feel like I have been doing ✅ what you advise for many years and that I was mistreated for that..Being told I was too kind, too genuine and to vulnerable 😢 In fact I was unconsciously operating at the 4th or 5 th level already 😂 Today I am going to buy and listen to the audiobook of yours so that I can go back on track to create meaningful and profound relationships that I have been craving for so many years 😅❤ Thank you 🙏 for your book 📚
@MGAF688
@MGAF688 10 ай бұрын
As a huge John Elway fan, it greatly disappointed me that he and Janet divorced. I really think highly of Janet. I hope she is doing well.
@lindabacas2164
@lindabacas2164 11 ай бұрын
How do I find out what I have.? Five years of treatment for CIDP AND now being told I don’t have that. But again I’m in extreme pain every day. And have no idea what I have.
@InvisibleDisability
@InvisibleDisability 11 ай бұрын
💔
@jfouts1979
@jfouts1979 Жыл бұрын
You cannot make a primary care doctor do his or her job though....
@The_Gimmick_of_Specific
@The_Gimmick_of_Specific Жыл бұрын
This interview is wonderful! I didn’t know about her but her story and faith is amazing! Praise God! God Bless her for sharing her story.
@krishnansrinivasan830
@krishnansrinivasan830 Жыл бұрын
Incredible :)
@reneedixonart
@reneedixonart Жыл бұрын
I have that ID card too!! 🥰
@InvisibleDisability
@InvisibleDisability Жыл бұрын
That's great! 💙
@erickaepworth6257
@erickaepworth6257 Жыл бұрын
I would love to hear this interview again, updated to current changes in labeling and legislation.
@aheadofthecurve4957
@aheadofthecurve4957 Жыл бұрын
You're doing great work! Thank you. You got this!
@SillySherriProductions
@SillySherriProductions Жыл бұрын
Wow! What an amazing adventure to bring awareness to invisible disabilities! ⭐️🎶🥳🎶⭐️
@InvisibleNoMore
@InvisibleNoMore Жыл бұрын
Thank you for helping millions living with invisible disabilities be "Invisible No More!" 💕🤩💕
@SPS_survivor
@SPS_survivor Жыл бұрын
I’m having a mega hard day with crazy spasms and severe pain today guys, also panic attacks galore. I cannot stop the tears from falling. I have come back to watch Tara’s interview on this channel … somehow you give me strength. Thank you x
@InvisibleDisability
@InvisibleDisability Жыл бұрын
We are so happy to hear you found some encouragement! Thank you so much for sharing! 💙
@InvisibleNoMore
@InvisibleNoMore Жыл бұрын
Great skate for the Invisible Disabilities Association, who is bringing amazing awareness, education, programs and support around the world! ⭐️🎶🥳🎶⭐️
@SillySherriProductions
@SillySherriProductions Жыл бұрын
Wow! What an amazing event to bring awareness to millions living with invisible disabilities! ⭐️🎶🥳🎶⭐️
@SPS_survivor
@SPS_survivor Жыл бұрын
Hi guys, my name’s Martin from the uk 🇬🇧 I have been diagnosed with SPS for 13 years. Since I was 30 and it took at least 6 years to diagnose me through several doctors, consultants and neurologists. I felt and still do feel a great burden to my family and the couple of friends I have left and I feel guilty all the time having to ask for help with stuff I used to do with ease. When I’m in excruciating pain, having full body spasms for hours on end, it upsets me to see their pain more than my own. I wish I could do something to raise awareness over here in England such as go to the newspaper or local news as I may just be able to help one person that may not have been diagnosed and are still suffering, feeling crazy cos they don’t understand what’s happening to them. I’m worried that people may think that I’m after sympathy or pity when I just want to raise awareness and would love to make a way of raising funds for research. You all look after yourselves, those who are suffering themselves and of course those of you who are caring for friends and family with this condition 💙💔
@luvsilly60
@luvsilly60 Жыл бұрын
What bothers me. Is I get the feeling the cure will end up being something already in the medical community. Decades ago I was doing online dating and a darling woman I was communicating with was suffering from an autoimmune disorder. One out of 300 people is a large number. Sounds like an infection in the brain lining.
@luvsilly60
@luvsilly60 Жыл бұрын
Checking in on Jennifer. This is several years old.
@InvisibleNoMore
@InvisibleNoMore Жыл бұрын
Great practitioners focused on helping people! 💙
@InvisibleNoMore
@InvisibleNoMore Жыл бұрын
Great broadcast! 💙