Megan's Movement Below Skull-T2 Fusion Day Before Scoliosis Surgery 9/11/17

Рет қаралды 14,487

5 жыл бұрын

Find me on Instagram: @thetravelinghaloofhope
This is a hard video to post. I made it for myself a year ago the day before my fusion C6-L2 with no intent on sharing; however, its a year later, there are issues & I think it's important so people with EDS can see what it looks like to be unstable below their fusion in their thoracic spine.

Пікірлер: 18

@karenrodriguez5993 5 жыл бұрын

Oh, Dear Megan. I’m praying that your surgeon is able to help you, and for a speedy recovery. Please keep us updated. Keep your spirits up. You are an inspiration. Sending you love and light. XX

@SatokoLangley 5 жыл бұрын

I have scoliosis since I was born and I developed severe lower back pain nearly ten years ago, I was 25. And last year, my body started to collapse. In past 10 years, I have seen many many doctors, especially last one year. For a year, I couldn’t get up, just couldn’t get up or keep upright position. I saw your video about your neck. It was just like that on my whole upper body. I was temporarily blinded on my right eye for months. I had so much nerve pain which made me scream. Although my neck MRI showed severe straight neck and diffusion which obviously irritating the nerve, it is not neurologically significant enough. So my diagnose was psychosomatic. Now I am suspecting condition called CSF leak. And many of spontaneous CSF leak patients have the connective tissue disorder. I don’t have the connective tissue disorder like you. But many CSF leak patients feel better by drinking Oral rehydration fluid. It is expensive drink so I take sports drink instead. That made my life far easier. Now I can walk, bike, cook, and “think” better than before. I know my information may not helpful , and I understand you are already doing your best. I just wanna say I love you, and thank you for sharing your video.

@russelltherhinostoppel9246 5 жыл бұрын

I pray you keep getting better. Stay positive.

@leahkaminski9918 4 жыл бұрын

OMG I Follow you on insta i am so happy i found you on here your such an insperation to so many you go girl

@DaytonHistory 5 жыл бұрын

Megan how old are you? Im a 32 my name is Andrew. You are real inspiration to me to keep going. Do you ever get discouraged or have negative thoughts?My neurosurgeon told me that they don't want to operate yet but i have degenerative disc disease in several places in my Lumbar and thoracic spine and then in my neck I have two levels of foraminal stenosis with disc dessication and Facet Joint arthritis with hypertrophy and they said that my neck is losing its lordosis and becoming kyphotic. I get dizzy and have headaches everyday and pain in my shoulder blades and tightness. I've been really down lately and I'm also afraid of what will happen when I get older do you ever worry about what things will be like when you get older? I'm scared that in addition to the Natural aging process that I'm really going to be miserable. Most of mine was caused by being over 400 pounds for the last 14 years I'm currently preparing to have the gastric bypass surgery as well.

@karenrodriguez5993 5 жыл бұрын

Andrew, your post makes me so sad. I too have back issues. I just turned 50. I also have Degenerative disc disease. My live has drastically changed in the past few years. It’s horrible. Keep your spirits up. XX

@MeganKing19 5 жыл бұрын

Hi Andrew, I wouldn't be human if I didn't get discouraged. I worry I won't find help but a doctor has always come around and been able to help. It's difficult when it's thing after thing. They may not want to operate until it's an absolute necessity. Surgery isn't always the best option for one's situation (I am in no way minimizing the issues you're dealing with). I do worry when I'm older but as a whole not so much because there's no benefit with me worrying about the future. Right now things need to be addressed and I wouldn't change that. I hope you will find help for your spinal issues. My best advice is to hold off until you absolutely need it. I hope you feel better. Hang in there :)

@annhitchin6756 5 жыл бұрын

I have had scoliosis surgery and pelvic fusion, in all I have had 6 operations. It has been many years and I still have pain.

@MDI.PHOTOGRAPHY828 5 жыл бұрын

Lawd you're beautiful. My uncle has eds, think he's in his 50s now.. either way, obviously you don't have to be told to be strong; you clearly have that hardwired into you.. no pun intended . 🌹

@karenrodriguez5993 5 жыл бұрын

Hi Megan. It’s October 16th and we haven’t heard from you. I hope the surgery went well. Please let us know. XX

@MeganKing19 5 жыл бұрын

Hi Karen, this particular video for this issue was done last year in 2017. I may or may not have written it in the about section. Sorry about the confusion. But I'm having surgery in 2 weeks so hopefully that'll be the last one for a long time. Take care & thank you for thinking of me.

@karenrodriguez5993 5 жыл бұрын

Megan King Please let us know how you do. I wish you the best.