Meet Zach Crean, a young man whose mother, Kelly, suffered from TN for 25 years until she succumbed to the effects of this horrible disease in January 2023.
Пікірлер: 59
@SamVanZam7 ай бұрын
Dear Zach, my hear is with you. I am 39 years old and battling TN. I started to crying while listening to your mom's voicemail. I understand her desire to apologize but I also reject it because its not fair. Youre a kind person and son to see that in her. and to see that in the rest of us. It was your message to those of us fighting that made me truly hear your proud mom working through you. Thank you for sharing hers and your story.
@ORDEROFTHEKNIGHTSTEMPLAR137 ай бұрын
I lost my mom yesterday so i know what your going through brother its not called the suicide disease for nothing RIP 😢
@moonlight.sunlight7 ай бұрын
I'm sorry to hear this. Please take care.
@MichaelBone-hj7srАй бұрын
That's a Horrible Tragic Story. May she RIP.
@-growler-28109 ай бұрын
Zach, I'm only at the point in this video where are are telling us that your mum passed away and my heart aches for you and your family. Your mum was a beautiful, courageous and wonderful woman and I believe she's watching down on you and guiding you. I can't begin to imagine the hurt and pain you've been through in your life. It's so tragic and I admire you for talking about this wretched disease ( I have also suffered from this). You are a very articulate, handsome young man with a fabulous voice and I know you will make a great life for yourself. I'm going to finish watching the video now. God bless you from Sheffield United Kingdom ❤xxx
@gloriarivera75889 ай бұрын
❤
@kortneyyarbrough5 ай бұрын
Thank you for sharing this! I’m 37 with bilateral trigeminal neuralgia. My heart aches for what you and your mom have gone through. But God…..He can bring beauty from ashes. Love to you
@charinagel56907 ай бұрын
I'm so sorry. Mines is a little different as it affects neck and head but its excruciating beyond words. I understand her completely. You are just so sick and in pain that it's unimaginable 😢 I don't know how to get through this either. You want to live for your family, but it's just too much 😢 I've bawled my eyes out at this.
@GgGg-zp2fb7 ай бұрын
WE NEED TO FIND A CURE!
@stephenzies88675 ай бұрын
Root Cause = Atlas C1 And Axis C2 Misalignment / Subluxation In The Cervical Spine. From Trama To The Head And Neck . Research : Blair Upper Cervical Correction , NUCCA , Advanced Orthogonal .
@andyn29943 ай бұрын
There are many cures already. I am 3 weeks post microvascular decompression. They go in and separate whatever is making contact from the trigeminal nerve. It worked for me after 5 years of pain. I was also taking nerve pain pills for the last 2 1/2 years leading up to my surgery. It helped block the pain significantly.
@J0R0B16 ай бұрын
I can't cry because it sets off horrible pain. But i wanted to because i understand the pain. It's unimaginably horrific. Thank you for making this. I have been in the worst flare-up ever the last few weeks, and it's just getting worse. Hoping the pain eases up soon.
@paulahensley91139 ай бұрын
i am sorry. about your mom i also suffer from this for 19 years
@susanann03019 ай бұрын
So what did you do to remedy the pain??
@user-ip2tt9uy4m5 ай бұрын
I am 53 years old, who have been leaving with TN. You are hero to come out and share what your loving mother faces TN and later lost her life. May her soul RIP..
@SuperRasta057 ай бұрын
I wish her medicines and treatments were discussed here. People want to know what works and what does not work for her and for themselves. Very sad video. She seems to have been an incredible woman.
@marcanepa90634 ай бұрын
Thank you for sharing Your mother was very brave. TN is horrible and I I'm glad she's pain free and eternally happy! ❤
@bevvanderheyde9337 ай бұрын
I'm sorry for your loss. I'm suffering 10 years now. It's terrible but I found ways of managing the pain. It comes and goes. I get it for 3 months every year
@charinagel56907 ай бұрын
I just need to comment again ❤ Your mom is so beautiful and Im so sorry. I too was 46 this year in January and am in that intolerable chronic head and neck pain. I've not had a soul identify with in this horrific pain until now. We lost my niece to fentanyl poisoning around that time and I hope your fun happy mother is with my beautiful niece. I'm so so sorry for your families pain. No one should have to suffer this. It's so incredibly bad but I'm so happy your mom is not in pain ❤ she can truly watch over and guide your beautiful life 😢❤
@margaretlombardo13318 ай бұрын
I'm so sorry 😢. I was diagnosed in June this year. It's hardtop explain it to your friends and family. They don't understand what you are feeling. It's difficult for people to understand.
@charinagel56907 ай бұрын
I'm very sorry for your pain and wish you health and healing every day. ❤
@marydelware71624 ай бұрын
I have had it for 20 yrs the constant pain,but not as bad as what son has it is like a knife being put in his eye, he has had all kinds of surgeries and only some relief, and does use some pain medicine. Recently I found a Dr that has helped me,although mine was not as bad as his still ,I had a lot of pain in my ear, that never stopped, and my head neck area would just suddenly get so painful, I couldn't think straight Recently, I found a Dr that has me a lot,it may not be forever one, but if there is an Atlas Orthogonal Chirpractic place near you ,please try it. I can't explain it ,but you can find it on Google. I pray for relief for all. My son can't have the procedure because he has had neck surgery, and now has ,I guess rods in his neck. But it is definitely worth a visit.
@user-ml9vk8yy5u6 ай бұрын
Zach this just broke my heart and I appreciate this video so much your moms story is a blessing and I hope you spread this all around so many people don't understand it and it's the worst pain in the world even on good days :( thanks for sharing n your mom is an angel with you now and just know she is no longer In pain it never goes away and that is so hard to deal with thanks again
@user-xm2dw8kx6d6 ай бұрын
Thank you so much for sharing your story. Your mom was such a beautiful woman. I know exactly how she was feeling. I am 47 and have had this horrible disease for 17 years. Prayers for you and your family. Keep your dream of music going. Much love and hugs from Baton Rouge, Louisiana
@schlical7 ай бұрын
Zach, thanks so much for revealing and talking about your mom's struggles, as well as your own. Some are saying why would she choose to take her life rather than seek other options. I can only assume those comments come from people that do not know the extreme pain she was suffering. Even those that have TN, don't realize the pain level your mom was at. The amount of jolts of pain that happen throughout ones life can vary, be at different levels and frequency. I am pretty sure she did all that was known to her and what her insurance could afford her, etc.. Her car accident was so severe, it may have had a profound impact on her thinking as well, not to mention what medications she may have been on for the accident and TN. There are many aspects of TN, not just the pain. There is extreme depression due to not knowing when or if you will find relief, when the next jolt will hit, how long will it last, it changes your social life, your relationships with significant others, kids, friends, family, etc. You don't want to go anywhere in fear you will have an attack. You don't want to start a conversation in fear you will have to stop mid-sentence, etc. I have had it now since January 2023. And that is long enough for me!! I have tried all medications that were offered, to no avail. Although my frequent jolts throughout the day (TN1) have subsided, I am now dealing with the chronic pain of TN2. I am scheduled for the MVD surgery in March. This may not be my answer to this horrible pain, but I am going to give it a try. I am so afraid of it and not one person, including my husband can understand the pain or fear I have. I am relieved to hear you are not mad at your mom! You must know, in her right mind, she would have never taken her life! But, with TN + her car accident injuries, she was not herself! As a mother sitting here typing, I am so very proud of you and how you are making the best of your life and being your mother's voice. We are only getting a glimpse into what this did to your mom and what it is like for you, her parents and all that loved her! I truly wish you the very best life has to offer!!!
@chrislebo8090Ай бұрын
Thank you for this video. Your a great son to post this memorable video of your mom. I went through TN for 3 years and at the time i didn't have anything to live for. I failed killing myself with an overdose The pain is so horrible. Luckily it cleared up by itself. Every dr i visited thought it was just headaches. I'll be here if you ever need someone to talk to. God bless you and your family ❤
@michellebuttineau16187 ай бұрын
I have had tn for 34 yrs from ms I had gamma knife radiation 3 yrs ago it worded Toronto western hospital from neo surgeon worst pain ever I never came out of my rm once for 19 days from the pain 😢 sorry for your mum and you
@shonna792 ай бұрын
OMG ZACH, I started following her on TT. I understood her so much, I am now 44 years old and my pain has gotten to severe at times. I can promise you this, your face ran through her mind non stop just like my kids and grandkids. We would never leave you unless it was something we no longer could bare. You are always apart of her ❤ "If were Strong enough to let it in, we are strong enough to let it go" ❤ Rest Well Beautiful
@jolanda36929 ай бұрын
I feel so sorry for you and your loved ones dear Zack, I suffer from A-Typical TN, I cried watching your video
@michelleschneider32209 ай бұрын
Th.ere are no words to express...we just need a cure. No, not just that, people to understand that pain we can't ever get away from and grows every year we have it. I am in my tenth year and TN affects my left face.
@speedknob4 ай бұрын
I have endured TN for close to thirty years now. It has most recently played a large part of ending my marriage of 35 years, but it has also held me back in innumerable other ways. I fucking hate it, not sorry for the language. I try to live by the lesson that pain is inevitable but suffering is optional, but that is often more of a mantra than the reality. I do manage to hide it from all but the very closest people. I mean people know, but they don't really know. So sorry about another victim, so sorry about all of the peripheral damage. I fucking hate it.
@margariteolmos34578 ай бұрын
I'm so sorry. I have it and know how terrible it is.
@susanf74613 ай бұрын
I am so sorry for your loss. You are a wonderful son and your mom is watching over you. I think I have it too. Frightening. God bless you Zach
@Tootswilligers5 ай бұрын
I was close to S last week due to my TN after having a tooth extracted and massive infection. Doctors at ER refused pain meds and treated me like a junkie. Then went outside in frigid cold at night, waiting for a semi truck... Im better today mentally, but suffering from TN is the worst thing and we get gaslit by every medical facility now since the opioid crackdown/epidemic. We are all lumped in together with heroin junkies. We are constatly refused pain meds. 💔
@user-ip2tt9uy4m5 ай бұрын
I am living with the pain for 3 years now. Sorry for you loss.
@LifeNHonor5 ай бұрын
I’m so touched by your story💛🌈💐
@loriBorst3 ай бұрын
Thank you for sharing her story.... Your story.
@angelfishgirl227 ай бұрын
God rest her soul.
@Dreamgirl-xd1sx7 ай бұрын
My mother thinks its anxiety. She gets angry with me. I am totally alone.
@dianabriggs5123-Breathe7 ай бұрын
Your not alone sweetheart. There are more of us in this world. There are support groups on social media. Facebook, Instagram etc... When I first got diagnosed in 2014 with it, I felt alone. But I fount a lovely support group on Facebook. Every time I was having an attack, day or night I contacted another who was going through the same, they gave me tips and hope. Please give them a go. Hopefully see you on there. Big virtual 🤗 hugs.
@angelfishgirl227 ай бұрын
I just joined the Facebook group and it has really helped talking to ppl who understand.
@user-wo6ri3ow7v4 ай бұрын
I'm diagnosed with TN and it's a haul of hell to travel with
@samanthawinkelman80442 ай бұрын
My husband has had it for 33 years, it's horrific, trust me
@christinevanhook53457 ай бұрын
Your mom was beautiful.
@GgGg-zp2fb7 ай бұрын
Been 7 years have you guys founded something thats work ?
@andyn29943 ай бұрын
Have you had an MRI yet? The doctors never believed my pain until I convinced a doctor to send me for an MRI. I had read that that was the only way to see what was causing the pain. And it was true. Even the lab technician in their notes said I had an artery sitting and putting pressure on my trigeminal nerve. 3 CT scans never showed anything. You have to push and push for yourself. It’s not like it is on TV, the doctors don’t sit around trying to figure out how to cure you. There are so many ways of dealing with it now on KZfaq. Get referred to a neurologist or neurosurgeon as soon as you can.
@GgGg-zp2fb3 ай бұрын
@@andyn2994 hey, just found out i was low in b12 and thats the cause for my pain. Did mri no pressure on the nerve, idont have de typical tn with episodic electric shocks i just have burning, tingling and sometimes sharp pins and needles feelings. Based on my symptoms and my low b12 doctors says that most be the cause, i am doing b12 injections it has approved little bit better, the burning has gone or appear sometimes very mild. Just happy that you are pain free and hope i be pain free one day🤲
@magathaebai71145 ай бұрын
#MaySheRestInPeace #IAmSoSorryToHearThat
@user-oo4dt5rs8p7 ай бұрын
I am sometimes suicidal
@samanthawinkelman80442 ай бұрын
No cure please they need to find one
@stephenzies88675 ай бұрын
Root Cause = Atlas C1 And Axis C2 Misalignment / Subluxation In The Cervical Spine. From Trama To The Head And Neck . Research : Blair Upper Cervical Correction , NUCCA , Advanced Orthogonal . R . I . P
@susanf74613 ай бұрын
Get a lawyer!! That accident caused it
@peterpietrzak12537 ай бұрын
She Should've have gotten surgery for that you know?
@SuperRasta057 ай бұрын
All cases are not surgical cases but I wish they did discuss any treatments or medications she may have tried to relieve some of her symptoms...I hear ya....very sad story. I guess it is not called "The Suicide Disease" for nothing. 3 years for me having TN-1 mandibular (V3) and thank God for some of the medicines giving me some relief at times.
@peterpietrzak12537 ай бұрын
@@SuperRasta05 i guess chose to take her own life also?
@InfiniteLoveAwakenedАй бұрын
Watch her videos and you will learn she tried Everything!!! I pray for you to not ASSume before you do your research and I pray you never have to experience this affliction as so many do🙏💚