Having MCS is very difficult ,specially when your family and friends does not fully understand or lacking empathy on what we go through everyday ,you have to be a very strong person and also need some family and friends support to survive ,for all the people who doesn"t have MCS take proper precaution for you and your family because if you developed MCS there is no cure the only cure is avoidance and isolation a miserable and deadly existence ,so be safe everybody .

OMG! I am literally crying watching as I feel this way, feel so alone and alien. I have a severe allergy to fragrance myself and I have a job where they do not respect or validate my experience. I am struggling terribly breathing and most people do not recognize or understand how many chemicals are in everything. This speaks to why our environment is so polluted too.. We are playing money to poison ourselves. I just developed this sensitivity this year. Thank you so much for sharing this. I am grateful you have a friend like this. I struggle to think about even going out as going on the transit alone is anxiety inducing. I love your friendship so much.

Thank you! Wish more people would choose friendships over fragrances. But there is another factor. Methylisothiazolinone (7th Gen, ECOS), benzisothiazolinone, are both ODORLESS toxins that affect MCS patients, too, I'd appreciate an update, choose friendships over toxicants, because we will still be impacted by odorless products, too!

I love the slogan. Choose friendships over fragrances......and how nice to see you with Karyn! This is great education for all! Tx and LoLV.

Thank you so much for posting this video and what a good friend you are! At this time I have been pretty much at home for the last 7 months. After becoming sick with bells Pasley and shingles I think brought on from the exterminator. I became acute with chemical sensitivities. I had a Dr.'s apt this morning after the two hour wait and breathing in the floor cleaners the other peoples perfume my lips were numb, my vision was blurry, I had a headache and I just wanted to sleep. But alas I they called me and the Dr. had on perfume now I sit in a small enclosed room with her perfume but I really needed to go over my lab results. She stated that she remembered that I had a sensitivity so she would not sit to close. Then preceded to tell me that she needed to wear it she could not leave home without it. Imagine . If you can not have the expectation of not getting sick from your own doctor when even medical professionals do not understand what hope will I have to live any kind of normal life again!

Your blessed to have such a great friend.

The smell of fragrances in laundry products are made to last for months in Japan (fragrances microencapsulated in multiple layers) and even a friend decided to chuck everything in the house out, I couldn't enter. Even if you're scent free, once you go out you're full of fragrances from head to toe cos there's no place that doesn't contain those capsules in the air, so you can't have people over unless they're fragrance free AND have a fragrance-free car to travel without getting off on the way.

For myself, fragrances derived from a natural source are no different than synthetics. They both have the same result. So that means for me essential oils are no different than a chemical plug in air freshener.

Oh I wish people realised this. I can't visit people and people can't visit me. Everyone says they want to see me more but they won't give up fragrances 😞 other people just disappear.

I have this problem and dealing with this at work it has been a nightmare for so many years...

It’s so difficult and frustrating at work, and I can’t escape and can’t work from home too often. It’s exhausting and heart breaking, but I need to work. I don’t expect others to understand, and they don’t. It’s embarrassing to talk about it, people look at me like I’m crazy or neurotic. Thankfully, our apartment is a scent free environment, otherwise I’d have nowhere to go. I avoid family and friends and stay away from people as much as I can.

I was wearing perfume and I went some where and there was a lady setting by me she started sneezing and getting sick to her stomach and I felt so bad when I realize it was my perfume and now I understand what your are talking about

Awesome vid! I used to have asthma, and Anything would set it off scent wise. the mall was MISERABLE. science class, forget it! everyone always thought i was faking it to get out of class! My mom has migraines from scented candles and other fragrances, it can really ruin a day! God bless! you two made me smile!

I can relate to this, and I feel like fragrances are only getting stronger and more popular. Work is very hard sometimes. I get really fearful of laundry detergent too, especially if you're a child and don't know how to tell your parents that what they're using to clean your clothes is toxic to them :-(

I noticed your friend was wearing makeup, and were still able to hug. You're lucky that the makeup doesn't bother you or maybe your friend found unscented makeup.

Where can I get a list of things to do in order to prepare a home suitable for someone with chemical sensitivities? I am particularly interested in how to get rid of scents in clothing. Some of my children's clothing are handed down and it takes a long time to get the smell out

@TUCKERZONE We are so sorry to hear of your reactions. Millions of people report various mild to serious reactions to fragrances, including IDA President's wife and mother-in-law. It is not uncommon, though people often think it is. Sadly, this can cause isolation for those who live with these adverse health effects.

Oh My God..I can so relate.

I just found your video thanks to a related link from a friend. I have MCS--and it is a particular trial thanks to COVID. I can't wear a mask and I haven't seen my medical provider since last February. I need to--but how to get past that with them has become a big question. Phone consults are all well and good, but I need blood tests run for health issues we've been watching for a while now. Suggestions on how to get those blood draws without mask-wearing (which isn't going to happen) would be very helpful. The other thing I wanted to mention was that MCS and church (at least here) don't mix well at all. I really miss church, but I can't walk into any building anywhere without having someone normal vet it for me first. Sometimes they think I'll be safe, and then I walk in and it's still a hard no. Churches are especially problematic, not just because of the fragrances and detergent residues on people, but also because of carpet fresheners, bathroom air fresheners, furniture polish, and a hundred other things. If there's one place that I wish people cared enough to find a way to make this better, it's at churches across America. Maybe not every church needs to care this much--but when there are few to none in a local community, it's really hard.

Great Video:)

@DysautonomiaMD Thank YOU for jumping through hoops to see me, too!!!

Oh, this is the association I joined, ok, not the association but the support group. Some kind words n info. fr host no other echoes or friends that struck any conversation. I guess i m d untouchable, hahaha. it's quite quite quite alright, i do understand everyone is struggling to survive, have so much on each's plate. My motto is, a better world because of my existance. I wish everyone well, i cheer for everyone's bettering and whatever endeavor for wellbeing. i've always be a sickie, i can't handle much physical, not a full time job. Life def. not easy. u think u go for Ski mountain for fresh air for a treat, ok, u got sick to the core, w close to no ventilatoin indoor, heating up ur side of hotel going through renovation new carpet, paint, furniture etc, spa tower soaked in bleach, u flight to see total eclipse, wow! but d BBQ smoke, no where to hide but in car AC on no sleep, Northern light, whole Europe's sky is burning, i mean, the heating fume. 3week rarely sleep, miss plane, car accident, lost phone all contact, ordeal. But i m a glass have full person. if i manage to get by actually ok, neighbor fr hell w their drinking buddy cop friends make it hell, 24/7 make different kinds fume, lined up cars, trash cans broken tired open different windows etc to channel toxin to ur house when you reactor, police showed up, illegally handcuff u to psychiatric ward, to solitary jail pump in more fume spray bleach all over they knew i can't handle. I must be crazy right? cause nobody else behave like me. I almost died twice in solitary jail. eventually they stop the fume, let me go w my lawyer, cause i screamed to tell my story n begged them to put a bullet to my head to end my misery, every cell of my body is tore apart w what i breath in they pump via jail cell celling vent. It's just a few days, i lost trunks hair, 10% of my weight, i overloaded w fume in my body vomit through out, drive around hop in different vacation rental to sleep, water clean everything, water wash all beddings secretly cause i was not sure if host like it. I dared not to to that home where my neighbor illegally block all my air flow w 12ft hight black landscape plastic 280ft, his tenant side, blow in fume.. i am a walking dead, they made 4cases out of nothing in court, haha, u think court is, is what u saw in the movie?haha, WRONG. I am shocked to find and unfortunately experienced what they could twisted. MG. there's just no such thing as law if people think they can get away w. If they put me in jail or psy ward illegally where i can't control any of the element no place to run, I WILL DIE, i have no doubt. Trial in a few months. If they want me to die, I just have to DIE, what u gonna do, u r not equip, innocent law abiding lamb,have no voice by urself. If i have connection w some ganster, relatives of big shots or w 20-30mobs voices anger for me, none'd injustice'd happen to me. I just don't want to DIE FOR NOTHING

N this is super old, but so true.

Love, love, love this! Such a great cause. Especially in regards to this allergy. My question is are there any more natural or lighter perfumes that you might recommend. I still love the idea of perfume, and one that's more natural would be great to have.

Where can I find this list you spoke of that is safe products.