4 жыл бұрын
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@stephsjamn Ай бұрын
Diagnosed with Spasmatic Torticollis in 1987. Botox helped with my spams but not the pain I am now immune to it myobloc did not help at all and made it very hard to swallow. I do work full time it’s not easy but I am on my own and would loose everything if I went on disability, PA system. Pain is there everyday all day. Massage helps somewhat and use a heating pad. Depression and anxiety are definitely a part of my life. I take Diazepam daily, baclofen never helped me. I keep pushing on but one thing I know for sure is there are many who are worse than myself. This condition needs to be recognized like other major medical conditions.
@jdhwy_1019 Ай бұрын
Excellent information.
@deehubs1353 Ай бұрын
I HATE having spasmodic Torticollis, it has ruined my life.
@hechessscoaching9529 2 ай бұрын
Botox inj is costly in india. Other medicines are also costly. Is it possible for anyone to make it less cost?
@Rajeshshah-rn4ty 2 ай бұрын
Cervical dystonia. And spine problem. I lost job foreever dusability. Cant work 8 hours a day.
@Rajeshshah-rn4ty 2 ай бұрын
I know lot about. That. Car accident. Or. Chiropractor appointment cause. Dystonia. So. India and. Usa now. Theh start manipulation. Treatment. They damage neck. So. Aware of. Chiropractor. God watch . That only place. Pain come from. I do have. By chiropractor. I visit for lower back little pain. Chiropractor manipulate. Entire. Spine. Neck back. Now. Dystonia. Chronia pain. But not treatment anywhere in world 🌍. I take. Baclafan. Neurontin. Botox INJECTION. . not real cure. Carefull. Chiropractor 😊
@Rajeshshah-rn4ty 2 ай бұрын
Let everyone know. Do not go chiropractor. They damage my spine and neck. As well so many others. 😮. Baclfan help. Genapetin help. Chiropractor do inside othet injury 🩸🩸🩸🩸. Chiropractor damage. Make more spasm on neck and lower back. Person go for little pain. Chiropractor damage futher. That convert in cervical dystonia. Yes
@Rajeshshah-rn4ty 2 ай бұрын
Cervical. Dystonia problem come from chiropractor treatment. Or may sever car accident. So care full go with chiropractor. Than manipulate spine and neck loose real curve. Chiropractor not medical field. Botox only help. But. Cervical dystonia not cure. How many injections human take. Jusy. Not go chiropractor. Chiropractor are liable for that problem
@sherislayton6375 4 ай бұрын
Thank you so much for sharing this information. I have been on this journey since being a young adult. This is a different way to look at maybe finding relief. God bless you.
@jminnella8540 5 ай бұрын
Hello, thank you for sharing. You may have mentioned in the video but i don’t think i heard what test did you get, Xray, CT ect.. to determine that you nasal septum was off?
@alfredalfredo5080 7 ай бұрын
❤❤❤❤❤❤❤❤❤
@alfredalfredo5080 7 ай бұрын
This video is the best on u tube 💯I felt the stretch in many angles I’m trying to fix my tilted head to the left where my chin goes to the right . Thank you so much this helped me immensely ❤❤❤❤❤❤🎉🎉🎉🎉💯
@virginiayauger497 7 ай бұрын
Very interesting and informative
@elainemar1841 9 ай бұрын
I need help 😢😢😢
@SpasmodicTorticollis 8 ай бұрын
Hi Elaine. Email us at [email protected] and let us know what your situation is and what you can use help with.
@christinesmith5678 10 ай бұрын
Brilliant Thanks
@lisbethoverton444 10 ай бұрын
This was absolutely fabulous Jamie 💓💓💓 Thank you 🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽
@Creestle 10 ай бұрын
I went to Dr. Demerjian -- his mouthguard improved my symptoms by 50% (I wasn't able to go back for follow-up treatment at the time though). I'm hoping I can go back for further treatment at some point.
@loispozsar2965 11 ай бұрын
How can we reach you? Are there any treatments now that can help?
@SunHealthMedClinic Жыл бұрын
Very interesting! Thank you.
@gabriellauer2390 Жыл бұрын
Can we please have a zoom meeting? I have diagnosed cervical dystonia and having some research lately… can I please message you on any communication app?
@SpasmodicTorticollis Жыл бұрын
HI there. Email us at [email protected] and I can send you information on upcoming meetings or webinars.
@loispozsar2965 11 ай бұрын
What about PTSD or many doctors suggest gabapentin. Saying that your brain is not getting GABAPENTIN.
@loispozsar2965 11 ай бұрын
Any help is appreciated. This is so devastating. I’m so depressed and isolate as much as possible. What about small amounts of alcohol.
@gabriellauer2390 Жыл бұрын
Can you please tell me what specific of aspercreme?
@SpasmodicTorticollis Жыл бұрын
Hi there! You can email Ken directly at [email protected]. He is happy to answer any questions about his experience with ST and how you can determine if yours may have similar characteristics.
@ryanlee7895 Жыл бұрын
What a great talk!!!!
@ryanlee7895 Жыл бұрын
I had big nose bleeds and codirized as a kid 5years old. ST showed up in 11th grade
@hirefoo2605 Жыл бұрын
I was diagnosed with spastic Torticollis lateral and cervical dystonia last year. I notice the change in my neck about 7 years ago. Never got an answer till recently. The only thing that started new which is possible why they knew was this mild head jerk. I was reading the progress is 5 years? What exactly does that mean? If my curve was 7 years old will it get worst? I’m I pass that and no hoping I get back to normal with the Botox. Or does that mean the head jerk will get worst for 5 years? I’m so confused. If someone can clarify this for me would be great. Thanks.
@lightup205 Жыл бұрын
How does the effect of botox change after years of injecting, in cervical dystonia? I've been getting this treatment for two years now.
@SpasmodicTorticollis Жыл бұрын
In general if the treatments are 90 or more days apart, patients continue to get help with their symptoms. But patient feel the extent of benefit varies somewhat treatment to treatment. This may not identical treatment each time as to exact injection site and strength per. Vial can vary slightly as it is a biological not yet pure chemical product. Drake D Duane, NS, MD Scottsdale, AZ
@radualexandrutaut2006 Жыл бұрын
torticollis hurts like hellllllll damn
@grizzyy26 Жыл бұрын
Dude thank you. I have Tourette’s and my neck tics. Last night it caused instant spasms and pain and i was diagnosed with Torticollis. This helped alot
@user-cd6me7zm7h Жыл бұрын
Упражнения отличные,но без перевода очень плохо их делать правильно.
@user-cd6me7zm7h Жыл бұрын
Поражены левые или правые? Перевод плохой, непонятно.
@deehubs1353 Жыл бұрын
Should I stretch both ways/sides? My head turns to the right.My muscles on the left feel so tight from resisting.
@lanosbhardwaj2082 2 жыл бұрын
How much time we do for day
@camillecali2 2 жыл бұрын
I have CD and just found this video too!! These look pretty good but what I learned is that using a heating pad or doing these after a hot shower helps to get a better stretch. Much more effective with heat first.
@lanosbhardwaj2082 2 жыл бұрын
@@camillecali2 thanku so much
@SpasmodicTorticollis 2 жыл бұрын
Hi Lanos. The key to these exercises is to listen to your body. Exercising to the point where you are in pain while performing them or will be in pain afterward because you over exerted yourself is not recommended. Start off slow doing a couple of sets of 10 with a break in between. Don't stretch to the point of experiencing pain but you want to get to the point where you can feel a slight pull of the muscles that are being stretched. Give those muscles a day to relax and recuperate and do another set of exercises that focus on other muscles. Then give them a day to relax and move on to the next until you have completed all exercises and then repeat the sets again. Remember to listen to your body and if you are feeling discomfort during or after the exercise, back off a bit on the stretch then slowly progress as you continue the rotation of sets. Baby steps is the key! :)
@SpasmodicTorticollis 2 жыл бұрын
NEXT SATURDAY! Exploring Music & Movement as a Path to Feeling Better - NIA Webinar Part 2 Saturday, June 25th at 10 a.m. Pacific time Enjoy a Nia Moving to Heal experience using music and gentle movement as medicine We’ll share a quick review + Q/A from your experience of our Part 1 session. Next, pull up that comfy chair and again enjoy a 30 minute movement experience designed to quiet your mind, relax and balance your physical body, inspire a smile and raise your spirits. There will be an opportunity to share your experience afterwards, should you desire. To Register, go to the following link us02web.zoom.us/webinar/register/WN_JRX4XuI0Rv-LcTHeNDdwbg
@nilofarkhan1672 2 жыл бұрын
Sir how can I do this treatment at home.... I am having torticollis at left side I am 20 yr old since childhood havit this.... But due to lack of awareness got no treatment
@behzadahmadi8133 2 жыл бұрын
Damn bro that sucks i got this to am 15 really sucks it have changed how my face is shaped and my neck hurts what about you?
@user-mw3rj6pe5r 2 жыл бұрын
Hi.... I had ceverical dystonia tortilla How can you help me? I am from Iraq... Is there dress to contact with Dr...
@SpasmodicTorticollis 2 жыл бұрын
Good Afternoon. If you have questions about spasmodic torticollis/cervical dystonia, please email your inquires to [email protected].
@marielamendez3244 2 жыл бұрын
Do you have exercises for oromandibular dystonia?
@jimmyshorten4410 2 жыл бұрын
Hi Doctor, After doing these very good exercises can I expect a good level of improvement after some weeks? Is it possible that I could get total relief from my problem by continuing the exercises over time? Jimmy.
@debabrato1 3 жыл бұрын
In India it is very difficult for me to find a good treatment
@elainemar1841 3 жыл бұрын
Gracias tengo desde el 2004 con esto y fui sanada con botox y masajes .... por 5 años en tratamiento y paré todo por 10 años estuve normal ,pero este 2020 a regresado Pero no he podido regresar a un nuevo tratamiento por miedo a esta pandemia. Muy buen ejercicio y si tienes a alguien que te ayude con los ejercicios serán más beneficioso
@user-eg7in3ed1v 3 жыл бұрын
this is a very good and practical thanks
@georgezsebe9794 3 жыл бұрын
Really helpful series, thank you for posting them!
@shivappagaddadavarayurvedi8265 3 жыл бұрын
Dr smasmodic Torticollis explained very well thanks lot god bless you well. danyawad from Bharat.
@PEMF.Hydrogen.LLLT.Experts 4 жыл бұрын
Learnt a lot from you, thanks!
@SpasmodicTorticollis 4 жыл бұрын
Thank you for your kind words. Please let us know if you have any questions.
@nissalane11 4 жыл бұрын
my head tremors began in the year 2005 with my friend saying "do you know your head shakes?" this led to a trip to the neurologist in my area.
@SpasmodicTorticollis 4 жыл бұрын
We have spoken to many people who did not know that they had a slight head shake or that they were unable to hold their head centered. It was family or a friend that noticed this and brought it to their attention.
@SpasmodicTorticollis 2 жыл бұрын
We hope that you are able to find a treatment with the movement disorder Neurologist you are currently seeing. If you have any questions about spasmodic torticollis/cervical dystonia, please email us at [email protected]
@wishingonastar75 4 жыл бұрын
Thank you for posting, I will try these excercises ❤️
@nilofarkhan1672 2 жыл бұрын
Hello have u got the results from these exercise
@agenesis3 9 жыл бұрын
Very good Dr....I love him .......
@streamofawareness 11 жыл бұрын
He performed DBS on my dad for Parkinson's. This man is a wonderful surgeon and he is changing my dad's life. For the first time in almost eight years my dad is going to feel good again. I can't thank him enough. It's this doctor and GOD coming together to heal! God bless Devin Binder.